Our Campaigns

MS Ireland, as the representative body for the MS community, believe it is our obligation to address issues which impact on the lives of all people affected by multiple sclerosis. In order to address these issues, it can sometimes be necessary to campaign on behalf of change; change in attitude, change in understanding, change in policy with respect to how decision makers legislate on behalf of issues which directly relate to not only the standard of living, but the quality of living of those affected by MS. We acknowledge this change can only come about through persistence and perservance.

Ongoing Campaign(s)

Time to Act - In March 2017, MS Ireland released ‘Time to Act – A consensus on early treatment, a consensus statement on early diagnosis and treatment in MS. Based on a paper published by the UK MS Society in September 2015, this document outlines and reviews the latest research evidence regarding the importance of starting treatment with a disease modifying therapy (DMT) as soon as possible after diagnosis. In adapting this paper for the Irish context, MS Ireland consulted with a group of Irish neurologists with a specialist interest in MS. Time to Act contains detailed recommendations for policy makers and clinicians. The policy recommendations call on the Government and the HSE to invest in Ireland’s critically under-resourced neurology services, increase the numbers of consultant neurologist and MS Nurses, improve access to MRI scanning, develop an MS register and improve the systems for making new medications available. Download Time to Act here

Access to Medicines – in August 2015 MS Ireland released the Access to Medicines Campaign Handbook. The handbook aims to enable people with multiple sclerosis to access the medicines they need to treat their condition and impact debilitating symptoms including impaired mobility, severe fatigue and cognitive difficulties. It provides practical advice for people with MS on their medical rights and options as well as how to engage with the health system. The handbook has been accompanied by ongoing lobbying and awareness-raising. Download Access to Medicines Campaign Handbook

Neurorehabilitation – in conjunction with partner organisations in the Neurological Alliance of Ireland, MS Ireland is involved in campaigning for development of neurorehabilitation services. Read more about NAI’s campaign. 

NAI launched the ‘We Need Our Heads Examined’ campaign for neurorehabilitation services on 23rd June 2016. Since the launch, campaign group representatives including MS Ireland staff have met with Simon Harris, Minister for Health, and other political representatives. The campaign has also generated considerable media coverage. 

Sativex - is a cannabis based drug, which has been made available in other countries including the UK, to treat the symptom of spasticity (muscle stiffness) in people with MS. In 2014, Sativex was granted a license in Ireland so neurologists can prescribe it, however the HSE do not currently reimburse it as they do not deem it to be cost-effective, so it remains unavailable at present. MS Ireland has written to the Department of Health about this issue a number of times and in February 2017 we made a detailed submission to the HSE Corporate Pharmaceutical Unit which can be read here

You can also read our Briefing Document and Position Paper on cannabis-based medicinal products here

Home care - In September 2016, MS Ireland joined forces with a group of other voluntary sector organisations to call on the Government to invest in home care services. A group of 17 organisations came together on 27th September in an event outside Leinster House at which a number of people, including Sinead McArdle who has MS, spoke about their experiences of trying to access home care. Discussions between the organisations involved in this campaign are ongoing and follow up activities are planned for 2017 and beyond.


As a collective voice for the rights of people with MS we strive to use our influence to advocate effectively for the MS community. We endeavour to inform and educate wider society to the condition of multiple sclerosis, and through this greater understanding, to highlight the needs of those affected by the condition. While reacting to the current challenges faced in our ever-changing society, we also consider it necessary to look towards future challenges which will develop and to highlight these issues now in order to pre-empt growing problems.

Get in Touch

To let us know about an issue you feel we should be campaigning, contact Harriet Doig: harrietd@ms-society.ie

Latest News

More news

What's hot

Tcd

Public Lecture

'MS Research Explored': Thursday, 30th November 2017 at 6pm, Trinity Biomedical Sciences Institute, Dublin 2. All welcome

Find out more

Events Calendar

» Our next Event

24 November 2017: Yoga group classes, every Friday for 1 1/2 hours per week. Classes commence 29th September for 10 weeks

View all events

eNEWS SIGNUP

If you'd like to receive e-news updates from The Society please enter your email address below. If you want to know more about how we manage personal data then please see our privacy policy.

My local MSI

Map of MS Ireland's service areas South Mid West West Midlands South East North East North West North Dublin City and Fingal South West Dublin and Kildare South East Dublin and Wicklow