Multiple Sclerosis Ireland
South East Regional Office
Walkin Street, Kilkenny
T: (056) 77 77 771 | E: firstname.lastname@example.org
Regional Co-Ordinator & Regional Community Worker - Tipperary South
Office Hours: Mon to Thur 9am to 5pm
A: Walkin Street, Kilkenny
M: 087 2663564 | E: email@example.com
Regional Community Worker - Waterford
Office Hours: Tue/Wed 9am to 5pm/Thur 9am -12.30pm
A: c/o 75 St Catherines, John's Hill, Grange, Waterford City
M: 087 9006171 | E: firstname.lastname@example.org
Regional Community Worker - Wexford
Office Hours: Tues/Wed 9am to 5pm | Thurs 9am -12.30pm
A: Block A, First Floor, Wexford Local Development Offices, Spawell Road, Wexford
M: 087 7375298 | E: email@example.com
Administrator/Clerical Resource Worker
A: Walkin Street, Kilkenny
Tel: (056) 77 77 771 | E: firstname.lastname@example.org
Data Collectors (NSPDD)
Maurice O Connor
'9,000 Steps' walk, run, dance or move for MS World MS Day 2016 will take place on Wednesday May 25th and those living with Multiple Sclerosis in Ireland are asking people to walk, run, dance or move 9,000 steps for MS (6.5k) and raise funds for vital services. Mum of three Olivia Kirwan, 36, was diagnosed with Relapsing Remitting MS at the age of 29. Olivia is representing the MS community this World MS Day 2016. MS Ireland, the national organisation providing vital services, information and support to people with MS is encouraging everyone to get involved in events around the country and and to please text STEPS to 50300 to donate €4* Text costs €4. MS Ireland will receive a minimum of €3.25. Service Provider: LIKECHARITY. Helpline: 076 6805278. Ava Battles, Chief Executive, MS Ireland comments: 'When World MS Day comes around each May it’s a great opportunity to raise awareness of Multiple Sclerosis and support people with MS locally. We’re delighted to launch the fundraising campaign ‘9,000 Steps for MS’ to mark World MS Day. We know that exercise has great benefits, for people with MS it helps manage symptoms and of course exercise helps all of us. This campaign reflects a community of more than 9,000 people with MS and encourages everyone to get involved in whatever way they can.' Supporters of World MS Day and 9,000 steps for MS include Lorraine Ho, Bootcamp Ireland; Former Munster/Ireland rugby player, Jerry Flannery; Leinster Rugby player James Tracy; Ireland’s women’s rugby star Ailis Egan; University of Limerick (UL) and many more are taking up the #strongerthanMS campaign.
Make your voice heard! MS Ireland is conducting a comprehensive survey of the needs of people with MS. This will be the first such survey of its kind and the intention would be to repeat the survey every two years. The results of the survey will help us to plan our services and will inform our ongoing advocacy work. It will also help to inform us of where there are gaps currently in service provision and the information gathered will offer us an evidence based platform to campaign on your behalf. It is therefore very important that we get as many responses as possible – this is a vital opportunity for people with MS to have their voices heard and make their needs known. The survey takes approximately 15-20 minutes to complete. It can be completed online at the link below OR printed copies are available from MS Ireland - please contact reception on (01) 678 1600 or email email@example.com All responses will be anonymous and the questionnaire does not ask for any personal information. We would like to assure you that the information gathered will only be used for the purposes stated above. If for any reason you cannot fill out the questionnaire you can get someone to fill it out with you on your behalf. Thank you in advance for your participation.
Opportunities in Specialist Neurology Nursing St. Vincent’s University Hospital (a member of the St. Vincent’s Healthcare Group, incorporating St. Vincent’s University Hospital, St. Vincent’s Private Hospital and St. Michael’s Hospital, Dún Laoghaire) is a major teaching Hospital affiliated with University College Dublin. St. Vincent’s University Hospital is also a member of the Ireland East Hospital Group. We are proud to bring together a tradition of excellence in clinical care, research and education and a commitment to innovation in order to deliver the highest standard of care to our patients. As we continue to drive major change we are looking for talented individuals with the ambition to make a real impact on our future. St. Vincent’s University Hospital has some exciting opportunities for skilled and specialist nurses to join a progressive and dynamic Neurology service which includes research and education. Position: Clinical Nurse Specialists in Multiple Sclerosis- Ref: HR16E119 St. Vincent’s University Hospital is recruiting for one permanent and one year fixed-term Clinical Nurse Specialists in Multiple Sclerosis. The roles will provide expertise and specialist nursing services to patients and their families living with Multiple Sclerosis. The roles also provide support and advice throughout the disease trajectory from diagnosis onwards. Please visit the careers page on our website for further information and job descriptions on these opportunities: www.svuh.ie Closing date for posts Sunday, 15th May 2016. Get in touch Informal enquiries to: Ms Ann Flynn, Interim Director of Nursing. Email: firstname.lastname@example.org or Telephone: (01) 221 4552. St. Vincent’s University Hospital is an equal opportunities employer and our buildings and grounds are smoke-free. St. Vincent’s University Hospital is JCI accredited.
In our lifetime the world has indeed become a smaller place. Odd then, that our joint experience with this disease is so varied… Multiple Sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain and between the brain and body. We know that. It is estimated that approximately 2 million people in the world have multiple sclerosis and about 9,000 of them live here in Ireland. We know that too! While the exact course and combination of symptoms that any one person living with MS will vary, we can all say that we live within the same ‘boundaries’ of this disease. That is to say, we may all be travelling in different lanes, at different speeds and in different vehicles but we’re all on the same M50 of multiple sclerosis, no matter where in the world we are making that journey. We’ve all figured that out as well. What is different, however, are the circumstances, conditions and lifestyles that people from around the world travel on the MS highway. The global nature (and inequality) of living with MS has come into better focus for me. In the nearly four years since I moved to our remote corner of Kerry from Seattle, USA, I have had the opportunity to meet people living with MS from over 28 countries and from five different continents. We are all the same, but our commonalities often end at national boarders and regional thresholds. There is a massive effort underway to gauge these inequalities and improve the standard of care and services for those in direst need, while advancing research for better treatments and a cure. I am just back from presenting to a conference of online health advocates and bloggers called HealtheVoices in Chicago and will be off next month to Prague to speak at an International MS Patients’ Summit. I have seen first-hand the international similarities and differences, groups like The European MS Platform (EMSP), the Multiple Sclerosis International Federation (MSIF), the International Organization of MS Nurses, the Consortium of MS Centers and other groups are actively seeking ways to make all of the roads of the MS journey passable. In the last few years Ireland and MS Ireland have played an important role in raising both the bar and the floor in this regard. At the beginning of this month, for example, the International Progressive MS Alliance met in Dublin to assess progress and chart the organisations next important moves and my first experience with the International MS Patients’ Summit was in the Big Smoke as well! Much is happening around the world, much of what is happening in that world is passing through Ireland and the people of this country living with MS can be proud to know that we are not only being heard but that our voice is being sought as well. When I look at films like 'When I Walk' or 'MS Under Pressure' or read comments on my MS Facebook page, I see that the experience people have with living with MS varies as much as the symptoms of the disease itself. I am grateful that I have had the opportunities to live my life with MS on my own terms… as much as the stupid disease will allow. Because of that, I feel it is important that we work towards that day - until the day we can all exit our MS journey – so that the road we all travel is equally smooth, our vehicles have parity and that no one lane outpaces the others in fairness, kindness and compassion. Wishing you and your family the best of health. Cheers Trevis Trevis' book, Chef Interrupted, will be published in the Ireland next Spring. Follow him on the Life With MS Facebook page, on Twitter, and check out his website.
April's self-management series Mindfulness meditation has become increasingly popular in recent years. A growing body of research has explored its applications in terms of managing various MS symptoms including fatigue, cognition issues, stress, depression and anxiety. Jon Kabat-Zinn, who is credited with establishing mindfulness as a mainstream practice, defines it as “paying attention in a particular way: on purpose, in the present moment, and non-judgmentally”. The organisation Overcoming Multiple Sclerosis have detailed information on mindfulness and advice for practicing it. This article from Everyday Health explains how mindfulness might help with managing the impact of MS symptoms and some tips for practicing it. Here you can read a systematic review looking at some of the scientific research into mindfulness and MS. Further reading March: Positive Thinking/Challenging Negative Thoughts February: Personal Relationships and MS January: Personal Goals In May, we will look at Exercise
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