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Declan Groeger
11 Sep 2014

Our Responsibility to Research

I was just reading a blog post by Dr Eric Downer on the patient-researcher divide on 'Living Like You' and it brought to mind the need for patients to take part in research. Gandhi once said “the future depends on what we do in the present”. I know that he wasn’t talking about research and Multiple Sclerosis but it holds true just the same. If researchers do not do the research and we do not take part in that research then we are going nowhere fast; As Dr Downer said “We can read forever about the progression of the disease and symptoms in textbooks and journal papers, but we must talk more to people to understand individual experiences and hence become more informed.” Without the participation of patients such enquiries will grind to a halt. I think that if researchers have personal interactions with people affected by MS (or any other illness for that matter) it takes the illness out of the theoretical realms and lands it firmly in the personal realm.

Willeke Van Eeckhoutte
04 Sep 2014

To Tell or Not To Tell?

The choice to disclose an illness, newly diagnosed or not, to your employer is very much a personal one. Whichever you choose, fear of losing your job or being discriminated against can cause sleepless nights just when you need your rest more than ever.

Joan Jordan
28 Aug 2014

Back to School

Back in my school days, there were two types of copies: the ones with the lines and the ones with the squares. A protractor was about as sophisticated as my pencil case got - although, I was ecstatic to find lethal weapons (set-square and compass) therein! Things have gotten much more complicated in the year of the loom band with all kinds of paraphernalia to be bought before September the first.

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