Providing Care

Caring for someone with MS can be deeply satisfying. Partners, family, and friends can be drawn more closely together when they meet the challenges. But care giving can also be physically and emotionally exhausting, especially for the person who is the primary caregiver. That person is most often a partner or spouse, but can also be a child, parent, or friend.

There are a wide range of care giving activities, just as there are a wide range of abilities and disabilities among people with MS. Someone who is a Care Giver  to a person who has relatively few functional difficulties may be helping with injections of a disease-modifying drug and offering support in dealing with the medical team. Someone who is a Care Giver  for a person with a more severe level of disability may be involved in daily activities like toileting, dressing, transferring, and feeding, as well as medical treatments.

How can you improve the quality of care you provide? What changes (if any) need to be made? Here are some guidelines for evaluating your role in the ongoing care process:

Obviously, perfect balance is impossible, and probably not even desirable. But you should look for times where you can “make room for yourself,” and get some perspective. Remember to be a Care Giver for yourself, too.

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