MS Ireland
Informing, Supporting and Caring for the MS Community
Date/Time: 12 November 2015 - 09:45 to 11:15
Organiser: The MS Society of Ireland, Wexford South Branch
Region: South East
Date/Time: 12 November 2015 - 11:15 to 12:15
Organiser: The MS Society of Ireland, South East Region
Region: South East
Date/Time: 12 November 2015 - 10:00 to 13:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 12 November 2015 - 19:30 to 21:00
Organiser: Dublin North Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 12 November 2015 - 20:00 to 21:30
Organiser: North Dublin Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 12 November 2015 - 12:30 to 13:30
Organiser: South East Region
Region: South East
Date/Time: 12 November 2015 - 11:00 to 12:00
Organiser: East Coast Area: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 12 November 2015 - 19:30 to 21:00
Organiser: East Coast Area: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 12 November 2015 - 18:30 to 19:30
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 13 November 2015 - 10:30 to 13:00
Organiser: Southern Regional Office Cork
Region: South
Date/Time: 13 November 2015 - 08:00 to 08:00
Organiser: North West Regional Office
Region: North West
Date/Time: 13 November 2015 - 11:30 to 13:00
Organiser: South East Regional Office: Paula Dowd
Region: South East
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 13 November 2015 - 10:30 to 12:30
Organiser: John MacDonald
Region: West
Date/Time: 13 November 2015 - 10:00 to 11:00
Organiser: Western Regional Office
Region: West
Date/Time: 14 November 2015 - 11:00 to 12:30
Organiser: Una Goan, MS Society of Ireland
Region: South East
Date/Time: 14 November 2015 - 09:00 to 16:00
Organiser: East Coast Area: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 16 November 2015 - 11:00 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 16 November 2015 - 11:00 to 12:00
Organiser: Una Goan, MS Society of Ireland, Wexford Office
Region: South East
Date/Time: 16 November 2015 - 11:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 16 November 2015 - 11:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 16 November 2015 - 10:30 to 13:30
Organiser: Western Regional Office
Region: West
Date/Time: 16 November 2015 - 17:00 to 18:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 16 November 2015 - 14:15 to 16:15
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 17 November 2015 - 10:00 to 13:00
Organiser: The MS Society of Ireland, Wexford South Branch
Region: South East
Date/Time: 17 November 2015 - 19:30 to 20:30
Organiser: North Dublin Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 17 November 2015 - 11:00 to 12:00
Organiser: North East Regional Office: Lorna Callaghan
Region: North East
Date/Time: 17 November 2015 - 10:00 to 11:00
Organiser: Southern Regional Office, Cork
Region: South
Date/Time: 17 November 2015 - 11:15 to 12:15
Organiser: Southern Regional Office, Cork
Region: South
Date/Time: 17 November 2015 - 11:00 to 12:00
Organiser: MS Ireland, Southern Regional Office, Cork
Region: South
Date/Time: 17 November 2015 - 12:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 17 November 2015 - 10:00 to 16:00
Organiser: Western Regional Office: Aidan Larkin
Region: West
Date/Time: 18 November 2015 - 10:00 to 11:00
Organiser: Una Goan, MS Society of Ireland, Wexford Office
Region: South East
Date/Time: 18 November 2015 - 11:30 to 13:00
Organiser: South East Regional Office: Paula Dowd
Region: South East
Date/Time: 18 November 2015 - 11:00 to 13:00
Organiser: East Coast Area: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 18 November 2015 - 11:00 to 12:30
Organiser: Southern Regional Office Cork
Region: South
Date/Time: 18 November 2015 - 11:30 to 12:30
Organiser: MS Ireland, Southern Regional Office, Cork
Region: South
Date/Time: 18 November 2015 - 11:00 to 12:00
Organiser: Mid West Regional Office: John Mc Donald
Region: Mid West
Date/Time: 18 November 2015 - 13:30 to 14:30
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 18 November 2015 - 13:30 to 14:30
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 18 November 2015 - 12:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 18 November 2015 - 11:00 to 12:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 18 November 2015 - 10:30 to 11:30
Organiser: Western Regional Office
Region: West
Date/Time: 18 November 2015 - 11:00 to 12:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 18 November 2015 - 11:00 to 12:00
Organiser: Midwest Regional Office
Region: Mid West
Date/Time: 18 November 2015 - 14:00 to 15:00
Organiser: Midwest Regional Office
Region: Mid West
Date/Time: 19 November 2015 - 09:45 to 11:15
Organiser: The MS Society of Ireland, Wexford South Branch
Region: South East
Date/Time: 19 November 2015 - 11:15 to 12:15
Organiser: The MS Society of Ireland, South East Region
Region: South East
Date/Time: 19 November 2015 - 10:00 to 13:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 19 November 2015 - 19:30 to 21:00
Organiser: Dublin North Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 19 November 2015 - 20:00 to 21:30
Organiser: North Dublin Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 19 November 2015 - 12:30 to 13:30
Organiser: South East Region
Region: South East
Date/Time: 19 November 2015 - 19:30 to 21:00
Organiser: East Coast Area: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 19 November 2015 - 18:30 to 19:30
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 20 November 2015 - 08:00 to 08:00
Organiser: North West Regional Office
Region: North West
Date/Time: 20 November 2015 - 11:30 to 13:00
Organiser: South East Regional Office: Paula Dowd
Region: South East
Date/Time: 20 November 2015 - 11:00 to 18:00
Organiser: Frontiers in Neurology
Date/Time: 24 September 2015 - 09:00 to 20 November 2015 - 23:00
Organiser: energia, Irish Independent, YIFM, iDonate
Date/Time: 20 November 2015 - 10:30 to 12:30
Organiser: John MacDonald
Region: West
Date/Time: 20 November 2015 - 10:00 to 11:00
Organiser: Western Regional Office
Region: West
Date/Time: 21 November 2015 - 11:00 to 12:30
Organiser: Una Goan, MS Society of Ireland
Region: South East
Date/Time: 21 November 2015 - 10:00 to 15:00
Organiser: North East Regional Office
Region: North East
Date/Time: 22 November 2015 - 20:00 to 22:00
Organiser: MS Ireland
Region: South Dublin And Wicklow
Date/Time: 23 November 2015 - 11:00 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 23 November 2015 - 11:00 to 12:00
Organiser: Una Goan, MS Society of Ireland, Wexford Office
Region: South East
Date/Time: 23 November 2015 - 11:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 23 November 2015 - 11:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 23 November 2015 - 10:30 to 13:30
Organiser: Western Regional Office
Region: West
Date/Time: 23 November 2015 - 17:00 to 18:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 23 November 2015 - 14:15 to 16:15
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 24 November 2015 - 10:00 to 13:00
Organiser: The MS Society of Ireland, Wexford South Branch
Region: South East
Date/Time: 24 November 2015 - 19:30 to 20:30
Organiser: North Dublin Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 24 November 2015 - 11:00 to 12:00
Organiser: North East Regional Office: Lorna Callaghan
Region: North East
Date/Time: 24 November 2015 - 10:00 to 11:00
Organiser: Southern Regional Office, Cork
Region: South
Date/Time: 24 November 2015 - 11:15 to 12:15
Organiser: Southern Regional Office, Cork
Region: South
Date/Time: 24 November 2015 - 11:00 to 12:00
Organiser: MS Ireland, Southern Regional Office, Cork
Region: South
Date/Time: 24 November 2015 - 10:00 to 16:00
Organiser: Western Regional Office: Aidan Larkin
Region: West
Date/Time: 25 November 2015 - 11:00 to 12:30
Organiser: Louth Branch
Region: North East
Date/Time: 25 November 2015 - 11:00 to 12:30
Organiser: North East Regional Office: Kevin Curran
Region: North East
Date/Time: 25 November 2015 - 10:00 to 11:00
Organiser: Una Goan, MS Society of Ireland, Wexford Office
Region: South East
Date/Time: 25 November 2015 - 11:30 to 13:00
Organiser: South East Regional Office: Paula Dowd
Region: South East
Date/Time: 25 November 2015 - 11:00 to 12:30
Organiser: Southern Regional Office Cork
Region: South
Date/Time: 25 November 2015 - 11:30 to 12:30
Organiser: MS Ireland, Southern Regional Office, Cork
Region: South
Date/Time: 25 November 2015 - 11:00 to 12:00
Organiser: Mid West Regional Office: John Mc Donald
Region: Mid West
Date/Time: 25 November 2015 - 13:30 to 14:30
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 25 November 2015 - 13:30 to 14:30
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 25 November 2015 - 12:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 25 November 2015 - 11:00 to 12:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 25 November 2015 - 10:30 to 11:30
Organiser: Western Regional Office
Region: West
Date/Time: 25 November 2015 - 11:00 to 12:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 25 November 2015 - 11:00 to 12:00
Organiser: Midwest Regional Office
Region: Mid West
Date/Time: 25 November 2015 - 14:00 to 15:00
Organiser: Midwest Regional Office
Region: Mid West
Date/Time: 26 November 2015 - 09:45 to 11:15
Organiser: The MS Society of Ireland, Wexford South Branch
Region: South East
Date/Time: 26 November 2015 - 11:15 to 12:15
Organiser: The MS Society of Ireland, South East Region
Region: South East
Date/Time: 26 November 2015 - 10:00 to 13:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 26 November 2015 - 11:00 to 12:30
Organiser: North East Regional Office: Kevin Curran
Region: North East
Date/Time: 26 November 2015 - 19:30 to 21:00
Organiser: Dublin North Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 26 November 2015 - 20:00 to 21:30
Organiser: North Dublin Regional Office: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 26 November 2015 - 12:30 to 13:30
Organiser: South East Region
Region: South East
Date/Time: 26 November 2015 - 18:30 to 19:30
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 27 November 2015 - 11:30 to 13:00
Organiser: South East Regional Office: Paula Dowd
Region: South East
Date/Time: 27 November 2015 - 10:30 to 12:30
Organiser: John MacDonald
Region: West
Date/Time: 27 November 2015 - 10:00 to 11:00
Organiser: Western Regional Office
Region: West
Date/Time: 27 November 2015 - 11:00 to 13:00
Organiser: Mary Murphy
Region: Mid West
Date/Time: 27 November 2015 - 10:30 to 01:00
Organiser: MS Southern Regional Office, Cork
Region: South
Date/Time: 28 November 2015 - 11:00 to 12:30
Organiser: Una Goan, MS Society of Ireland
Region: South East
Date/Time: 28 November 2015 - 19:00 to 23:55
Organiser: Galway Footballers in association with Galway Football Supporters Club
Date/Time: 30 November 2015 - 11:00 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 30 November 2015 - 11:00 to 12:00
Organiser: Una Goan, MS Society of Ireland, Wexford Office
Region: South East
Date/Time: 30 November 2015 - 11:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 30 November 2015 - 11:00 to 13:00
Organiser: Mid West Regional Office
Region: Mid West
Date/Time: 30 November 2015 - 10:30 to 13:30
Organiser: Western Regional Office
Region: West
Date/Time: 30 November 2015 - 17:00 to 18:00
Organiser: Western Regional Office: Mags Ryan
Region: West
Date/Time: 30 November 2015 - 19:30 to 21:00
Organiser: Mid West Regional Office: Carol Phelan
Region: Mid West
Date/Time: 30 November 2015 - 14:15 to 16:15
Organiser: Mid West Regional Office
Region: Mid West
This week Emma Rogan feels a little bit… awkward. No one who walked into the room left without having some of their ideas changed to a more sex-positive way. It was after lunch, it wasn’t in the dark and they didn’t whisper when they spoke about positions, difficulties climaxing, drugs that help or toys that work about lubrication, orgasmic spinal centres not getting enough stimulation and vacuum device to help with erectile dysfunction in loud voices and in public! They were talking about sex and people with MS. “For most people, sexuality and its expression are a natural and important component of self-concept, emotional wellbeing and overall quality of life” World Association of Sexology Sex is a core part of being a human yet in this society it’s a topic so weighed down by disgust and shame that having a sex-positive discussion is almost impossible. Add to this living with a nerve-signal, body-altering condition and we’re all silent. I have scars in/on my brain and spine and damage to my nerves causing loss of feeling. I’ve not always been able to feel the touch of a lover and I’ve faked so many orgasms I can’t count. I’ve had great sex, fall-asleep sex and everything in-between. Sex only got better when I was honest about whom and what turned me on. There are thousands of women with MS and their sex-partners having unfulfilling sex lives for all sorts of reasons. Maybe it’s because of the dreaded T word- talking. Maybe being diagnosed with MS has severely impacted how we feel about our body and our personhood has been seriously harmed. Maybe it’s a traumatic experience in the past that has damaged our bodily integrity. Maybe when we’re in front of our neurologist our sex life not on the priority list. If we value your sex life, we must talk about it. Otherwise, we leave the clinic without a referral to a therapist or having a conversation with the MS nurse or a getting prescription for something useful or tips on what would work for us. We’re complicated creatures and if having MS is having an impact on how we feel about ourselves, we need to deal with it. If there are issues with our relationships, we need to talk with our partner and consider seeing a couple counsellor. If it’s something physical (loss of erogenous/clitoral sensation) speak to your neurologist or an urologist. Ask someone and learn to talk about it so when you do talk with your girlfriend or boyfriend, wife or husband or with someone you trust, you start getting sexual healing. MS Ireland has a trained psychosexual therapist on their staff, Mary Leonard (maryl@ms-society.ie) and she’s available if you need her help. Get in contact with an accredited therapist. Imagine living in an Irish society free of repressive attitudes, where people are decent to one another, disagree and still get on and where there’s a celebration of what it means to be a living, breathing human being. Imagine sex being a routine, part of daily life without competition and not about performance. Being with someone who really turns you on, you can talk to and who makes you happy is worth talking about. Sex doesn’t need to be mind-blowingly amazing every time but pleasurable, yes. The people from earlier were Charalampos Konstantinidis and Moira Tzitzika at the EMSP Spring Conference in Athens, 2017. I’m not a Greek goddess no matter how amazing I think I am. I’m an ordinary woman with needs and desires and I know what and who makes me feel good. Learning about and understanding the issues I have is a step towards me learning how to ‘overcome obstacles effectively’ (Moira Tzitzika). Having MS has not diminished my desire to have a healthy, sex-positive life and if talking about it helps, being awkward is something I know I can overcome. I’m on Twitter @emmadragon a lot and am eager to chat about this and other MS topics. Moira Tzitzika MSc, BTEC, EFT, ΕCPS, MSMC Charalampos Konstantinidis, MD, FEBU, FECSM MS Trust Sexuality and MS: A Guide for Women
Over the coming months the MS Ireland Western Regional Office are hoping to run a 'Mindfulness Course' for people with MS. However, we would like to gauge the level of interest in such a course before we book a qualified facilitator. If you are interested please click on the email below and let the team know what day/time/location that would suit you best and send it back to us here in the Western Regional Office western@ms-society.ie at your convenience.
Thursday, 26th October @ 6pm (Irish Time) Dr. Nonnie McNicholas, St Vincent’s University Hospital, will provide an update for people with MS and their healthcare professionals on the hot topics from ECTRIMS covering the main updates and research themes from the conference. Tune in on Thursday, 26th October at 6pm Irish Time. Click the link below and use the following password ThinkMS to login. http://esc.eventresult.com/default.asp?EventCode=Novartis&RoomCode=Novartis
Briefing Document and Position Paper on the need for an MS registry in Ireland MS Ireland has produced a Briefing Document and Position Paper on the need to establish an MS Patient Registry in Ireland. The paper outlines: What patient registries are Why registries are important Current patient registries in Ireland MS registries internationally MS Ireland’s position and recommendations The paper can be accessed here This document has been prepared by Harriet Doig, Information, Advocacy & Research Officer, MS Ireland. Questions and comments can be directed to harrietd@ms-society.ie
Global experts publish recommendations for overcoming challenges to improve clinical trials in progressive MS A special issue of Multiple Sclerosis Journal, sponsored by the International Progressive MS Alliance, has been published, containing papers that review the challenges and the potential solutions to improving clinical trials and their outcomes so that new treatments become available for people living with progressive MS. All of the papers are available to view and share Topics covered include: The evolving role of people with MS in clinical research - Some progress but more is needed Progressive MS trials: Lessons learned Targets of therapy in progressive MS Fluid biomarker and electrophysiological outcome measures for progressive MS trials
Have you got something to say about what your life is like living with MS in Ireland? Will you share it with the world? Find out how to get involved with our community blog MS & Me...
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31 October 2017: Ongoing Group physiotherapist led exercise classes for people with MS
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