Multiple Sclerosis Ireland is the only national organisation providing information, support and advocacy services to the MS community. We work with people with MS, their families and carers, health professionals, students and other interested in or concerned about MS.
MS Ireland is chiefly a services driven organisation, focused on providing timely, person-centered services that create independence and choice for person with MS and their family.
Download Our Services brochure (.pdf, 3.6MB)
Through our case work service our teams of professional Regional Community Workers support the person with MS through the transitional changes that MS, as a disease, presents. Support is also available to the family members in dealing with the challenges they may face as a family unit.
A range of living with MS programmes, workshops and activities are organised throughout the country that are targeted at various groups such as those newly diagnosed, carers, children of parents with MS and health professionals. Programmes include physical therapies, symptom management and information/education seminars.
Our confidential information line provides professional information and support to those affected by MS. The Information Line is open from Monday to Friday 10am – 2pm.
Our information tools include a variety of booklets and information sheets, our website www.ms-society.ie, our MSnews magazine, conferences, seminars and the valuable knowledge and experience of our staff.
The MS Care Centre is Ireland’s only respite and therapy centre for people with MS. It offers short-time respite care, therapeutic services, neurological assessments and many social activities in a homely environment in the suburbs of Dublin.
Our voluntary branches are a support network for people and families living with MS in local communities. They provide a welfare service, access to various therapies and organise various social gatherings.
MS Ireland advocates on an individual and collective platform for the improvement in services, resources and policies affecting people with MS.
First ever Drive-in Bingo in Laois Hundreds of cars carrying novices and experienced bingo players turned out on Sunday 27th July to Rathleague, G.A.A. grounds Portlaoise to blow their horns and flash their lights to claim cash prizes for their Bingo checks. “All eyes were down” as the numbers were called to the crowds participating in the comfort of their own cars and marquees were set up to facilitate people on foot. The total pay-out on the day was €4,900. Prices of books were as follows: single €6, double €10, and two jackpot fliers €3 each. The proceeds from this event and the next two events which will be held on Sunday 31st August and Sunday 28th September at 3pm will go towards three very worthwhile local groups: MS Ireland, Portlaoise G.A.A. Club and Portlaoise Musical Society Annette McCaul Fundraising Executive with MS Ireland thanked everyone from Laois and surrounding Counties who turned out to show their support for the work carried out by MS Ireland. She said “MS Ireland is very grateful to everyone who turned out today. We hope you all had a fantastic day and look forward to seeing you again in August and September. She went on to say “ this would not have been possible without the Volunteers who delivered a very professional game of Bingo despite one or two teething problems which were rectified immediately and the punters all showed their appreciation of the day out by blowing horns and flashing lights to confirm their continued support for the next two games” Get in touch For more info contact Annette086-8393964 or email firstname.lastname@example.org
Causes, attributions and intervention needs It is known that more than 50% of people with MS experience a fall within a 6 month period. However, there are currently only a few treatments to prevent or reduce falls for people with MS. Dr Susan Coote, who leads this research, is part of an International MS Falls Prevention Research network that will develop a falls prevention programme for people with Multiple Sclerosis. We want to find out about your MS, your falls and what you would like to be included in a falls prevention programme. This will help us to make sure that the programme is based on the needs of the people who will take part in it. What will I have to do? You will be taking part in a one to one telephone interview with a researcher from the University of Limerick. The interview will last between 25-30 minutes. Questions will include simple yes/no questions, multiple choice, open questions and others will be based on a scale. Although it is not necessary for you to be at home, it is advised that you choose a quiet and private place to conduct the interview. The interview will not be recorded; the student will fill in your responses on a data entry sheet throughout the interview. You are not required to answer any questions that you don’t want to and you may withdraw from the study at any stage. Who can participate? People with MS (over 18 years of age) who can walk at least 10 metres with or without an aid and have experienced a fall within the last 3 months can take part in this study. What do I do now? If you would like to take part in this study please contact the research team: Dr. Susan Coote Tel: 061-234278 Email: email@example.com Eve Geraghty Email: firstname.lastname@example.org
Do you have Multiple Sclerosis? Are you living near Galway, Limerick or Cork? If so, you may be suitable to take part in a new free 10-week physiotherapy-led exercise and education intervention MS researchers at the University of Limerick, in collaboration with colleagues in the US, MS Ireland and the Health Research Board have developed a new exercise programme that aims to improve strength and walking ability among people with MS. Who can participate? People with a diagnosis of MS, who are able to walk independently without a mobility aid, are over 18 years, and are currently not physically active, are invited to take part. What do I have to do? The study will involve an initial physiotherapy assessment followed by a 10-week group exercise and education programme (in a community setting in Galway, Limerick or Cork), wherein participants will be asked to attend six 1.5 hour exercise sessions and 3 follow-up assessments after programme completion. This study starts in September 2014. Get in touch For more information please contact Dr. Susan Coote Call (061) 234278 or email: email@example.com
We need 'focus' in our everyday lives to achieve our goals or targets. We need self-discipline to stay on track. Our battle with Multiple Sclerosis is a never ending battle and there are very few lulls in the fighting and because of that we need focus more than most. The need for focus begins with little things, with attainable targets. We need 'our little victories' as Claire Mitchell wrote in her recent blog. The longest journey begins with one step. Take the first step and set yourself a target, the second step is to set a route plan to reach the target and the third step is a celebration having reached your goal. These two lines from the poem ‘Don’t Quit’ define focus in my opinion ...'when care is pressing you down a bit, rest if you must, but don’t you quit'. We need our little victories to encourage us to keep going. Start small with realistic and attainable targets. There is no point in saying that I am going to walk one mile every day as an immediate target. Start small. I will walk 100 yards a day for the next week and then increase it to 200 etc. Re-assess your goals on a regular basis and don’t be afraid to downsize. Work within a comfort zone but strive to move outside of it. Stay mentally strong because very often mental strength is more important than physical strength. Decide on your goal. Weigh up the benefits of reaching your target and consider the disbenefits of inaction. Seek the help of a professional in deciding the route to your target and choose a realistic time frame within which to achieve it. Unrealistic targets or timescales will only disappoint you and this will ultimately break your determination and destroy your focus. Keep a daily record of what you achieve and this can help you determine whether you are doing what you should be doing. This is an instance when more than the thought counts. There are a number of different words to describe focus when taken in the context of this blog; self discipline and perseverance being the two that I like most. Focus is only important if you have set yourself a goal, a target to be achieved or a destination to be reached. Thus, if you don’t have a target you can never reach it. An ill-defined target is of no use. You cannot set out a pathway to achieve a goal unless you have set a goal. Putting it at its simplest; if you want something and don’t have the cash to pay for it you save. If you save enough you get your desired product. (Borrowing doesn’t count!!). While you are saving there will be tough choices to be made; if I buy this I can’t save that money and my target is still out of reach but if I don’t buy and save my target is nearer to my grasp. Some authors on the importance of focus, recommend telling people about goals in the hope that they will then act as monitors of your progress. Personally, I believe in keeping my goals to myself, however I do keep a daily log. Honesty with oneself is very important, dishonesty is only fooling yourself and ultimately leads to disappointment!
MINISTER KELLY RESTORES FUNDING TO HEALTH, DISABILITY & OTHER ORGANISATIONS UNDER SSNO SCHEME The Minister for the Environment, Community and Local Government, Alan Kelly TD announced today (18 July, 2014) that funding is being restored to a number of health, disability and other organisations for a twelve month period, following a review in relation to the SSNO scheme. The funding is being made available to the majority of organisations who were unsuccessful in their applications under the Scheme to Support National Organisations (SSNO) but had received funding previously from it up to 30 June 2014 and submitted a valid application in 2014. Minister Kelly is making available bridging finance totalling just under €1.3 million for a 12 month period to avoid a sudden and adverse impact on these organisations. The funding for each organisation will be restored based on their allocation so far this year. Alan Kelly said: “While I am restoring the funding to these organisations for a twelve month period, it is essential that, that time is used to find a more long-term sustainable solution to the funding problems of these organisations. In all, 30 organisations will have their funding restored until July of next year and the services and advocacy they provide should continue for that period.” “In agreement with my colleague Kathleen Lynch TD, Minister of State at the Department of Health with Special Responsibility for Primary Care, Mental Health and Disability, the public funding of national organisations in the health and disability sector will be reviewed with a view to rationalising the funding of these organisations to ensure efficiency in the use of public money and avoidance of duplication, while providing appropriate support to organisations working in the sector.” This additional funding will amount to €1.28m for the 12 month period to end June 2015. While it was known that the existing scheme was ending at the end of last month and applications were sought for the new scheme with no guarantee of continued funding, it is clear that organisations had become increasingly dependent on this funding. In the circumstances the Minister has decided to allocate this bridging funding for a twelve month period while a review takes place; the arrangements for this review will be finalised shortly. Alan Kelly said that: “The review should result in a system of support and funding for core costs of organisations delivering front line services in the health and disability sector in a way that avoids duplication and is cost effective.” This bridging funding in 2014/2015 is once off transitional funding and will enable organisations to plan for their future whether with or without State support such as that provided under the Scheme to Support National Organisations.
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