Our annual National Awards recognise those who through their dedication and selflessness play a significant role in the lives of others and the progress of the Society. In 2017 there are two awards and the categories are... MS Person of the Year and MS Volunteer of the Year
The 2017 National Annual Awards were presented at our 'Living Well with MS' Conference in Sligo on Saturday, 23rd September 2017.
This year we are delighted to announce the winner of 'MS Person of the Year' is... Paul McGovern
As many of you are aware Paul recently undertook to walk the Wild Atlantic Way, a challenging walk of 1,000 kilometres. This would be no small feat for anyone to undertake but for someone with MS, it is a huge achievement. The Louth Branch are very proud of what Paul has accomplished and he has been accompanied by his wife Karen who walked with him every step of the way. Indeed the Louth Branch felt they both deserved the award.
In 2015 Paul decided to take on a walk from Salthill in Galway to Dunleer in Co. Louth to raise awareness of MS and funds. As far back as 2010, Paul did a skydive on behalf of MS Ireland.
Paul has been described as “a truly amazing person” by Karen who she says he never stops thinking of others, that he puts his own struggles behind him to help others first. Paul is always trying to come up with ideas to raise awareness and funds for MS Ireland and he never really stops. She said she is honoured to have Paul in her life, that he is a real inspiration and deserving of this award.
Paul is truly deserving of the award of MS Person of the Year.
Congratulations to Paul.
This year we are delighted to announce the winners are... Marie Cronin-O’Donoghue & Paddy O’Donoghue.
Marie and Paddy have been involved with the Society for the best part of thirty years. Marie has served on the committee of the Fermoy Branch and has held officer ship positions on numerous occasions, diligently supporting the MS Community and also assisting new committee members in their elected roles.
They have over the years been the back bone of the Branch’s main fundraiser: The Annual Galtee Walk, taking it forward from year to year, improving it in all its aspects. The volume of work they put in every year is immeasurable.
They have been described as “the silent operators”, because you will never hear them but you will see the work they do, quietly going about their business making sure everyone is ok & well looked after.
A number of years ago they designed a purpose built catering facility so refreshments could be given to all those who walked on the day. It’s filled with a hitch and they tow it with all the equipment to Galtee Mor and store the unit all year round at their home.
They supervise all our Stewards, meet with them before the event to fill them in on all the Health & Safety aspects of the day, ensuring that everyone is prepared and ready for the task ahead regardless of the changeable Irish weather
They are on site Sunday morning at 7am until the day is done, (usually 7pm) they are the last to leave, picking up all the directional signs on the way home. Job done….till next year…..Volunteering at its very best
Their commitment, dedication, and diligence to the MS Society is truly appreciated by the Fermoy Branch and all the MS Community in the North & East Cork area. They are just wonderful people and a joy to all who know them.
Congratulations to Marie and Paddy
For further information please contact email@example.com or call (01) 6781600
Issue 4 is out now! MS Research is a bi-annual research eZine. In each edition we will be sharing the latest updates from scientific and social MS research, from here in Ireland and internationally. In this issue Research prioritisation survey results Research event reports Causes of MS Biotin Physiotherapy Psychology Stem cells Myelin repair ECTRIMS And so much more…. Get in touch Contact Harriet Doig, Information, Advocacy and Research Officer: email firstname.lastname@example.org or call (01) 6781600
New international research published into treatment expectations of people with MS New international research finds that people living with MS prioritise slowing disease progression when considering treatment choices. People with MS want therapies that reduce the number of relapses they suffer and to achieve better control of symptoms like fatigue and pain. The TaP-MS survey, published on 8th December, gathered over 1,000 responses from people with MS in countries ranging from the US, Canada and Australia to Sweden, Germany, France and the UK. It found that as well as seeking to stop disease progression people with MS want more vitality and energy. A new University College London School of Pharmacy report (Greater Expectations: the Future Hopes of People with Multiple Sclerosis, also published last week) highlights the value of early diagnosis and universal access to medicines that people with MS and their doctors judge are most likely to benefit them. It stresses the need for personalised combinations of medical, pharmaceutical, nursing, psychological, social and economic support for people with MS and calls for regular auditing of care delivery standards. Greater Expectations argues that current economic evaluation methods can under-estimate the true value of better MS treatments. Fears about the affordability of high quality health and social care can also be exaggerated. The UCL School of Pharmacy report in addition points to the potential for MS prevention programmes aimed at reducing vitamin D deficiency related risks and cutting smoking and obesity rates amongst teenagers. However, providing disease modifying treatments and investing in ongoing biomedical research are central to further reducing MS related harm. Greater Expectations’ recommendations include: Governments throughout Europe should publicly commit to providing everyone with MS with the treatments that they, their neurologists and other professional advisers judge will offer them maximum benefit; There ought to be open access to reliable, up-to-date, figures on all forms of MS DMT use on a country by country and locality basis; Care funders should provide adequate facilities for the early identification of MS and monitoring treatment outcomes. This includes assuring good access to neurologists and to MRI scanning (Ireland has the lowest number of neurologists per heard in Europe and long waiting times to access MRI) as well as maintaining high quality disease registries; People with MS and organisations representing them have a vital part to play in raising MS care standards, preventing access inequalities and contributing to pharmaceutical literacy Download TaP-MS (Treatment Expectations and Priorities of People with MS) survey Download Greater Expectations: the Future Hopes of People with Multiple Sclerosis Further reading MS Ireland's Time to Act report on the importance of early diagnosis and treatment in MS MS Treatment Decisions - MS Ireland’s guide to making informed decisions about MS treatment options
Many people with multiple sclerosis experience falls, which can have significant consequences for the individual. The MS Research Team at the University of Limerick, led by Professor Susan Coote, have developed a falls prevention programme for people with multiple sclerosis and we would like to assess how suitable and effective the programme is. What do I have to do? The 'Better Balance' programme consists of 12 weeks of twice-weekly classes run by a chartered physiotherapist. The classes will consist of 45 minutes of exercises aimed at improving balance, strength and walking and 45 minutes of education on topics such as fear of falling, task analysis, getting up from the floor, what devices can assist you – these will include group discussions and problem solving. There will also be a home exercise programme provided to each participant. The classes will take place in Limerick and Galway and will be offered in the morning and/or evening depending on the preference of the individuals attending. Beginning in January, interested individuals will be asked to attend an assessment day where a chartered physiotherapist will test your strength, balance, walking and feelings about falls. We will then give you falls diaries to complete for two months. This is like a calendar where you will write down if you had a fall. After these two months, the classes will begin. When the 12 weeks of classes are finished you will again have your strength, balance, walking and feelings about falls assessed and complete another two months of falls diaries to see if the intervention has been successful. After completing the two months of falls diaries you will attend one last assessment with the researcher to assess your strength, balance, walking and feelings about falls. Who can participate? To be eligible to take part you must have multiple sclerosis, be over the age of 18 years, have experienced a fall in the last three months, and be able to walk for 10 metres with or without a walking aid (one stick or one crutch). Get in touch If you would be interested in taking part in this study or have any further questions about the study you can contact the researchers by calling Laura Comber on 086 0231335 or email Laura.email@example.com or Prof. Susan Coote on (061) 234278 or email firstname.lastname@example.org
Letter to Minister Simon Harris regarding ocrelizumab Today, (Monday, 11th December) MS Ireland have written to Minister for Health Simon Harris regarding new medication ocrelizumab, which is the first ever medication to be indicated for primary progressive MS. MS Ireland are asking the Minister to take action to ensure that this medication is made available to people with MS in Ireland as soon as possible. Further reading Download letter to Minister Simon Harris. Information about ocrelizumab Get in touch Questions or comments regarding this letter can be directed to Harriet Doig, Information, Advocacy and Research Officer – email@example.com
Irish life sciences company, Genomics Medicine Ireland (GMI) have announced an important scientific research study aimed at unlocking the mystery of the genetic and lifestyle factors that contribute to MS. Volunteers with MS currently being treated at St. Vincent’s University Hospital, Tallaght Hospital, Cork University Hospital or Altnagelvin Hospital in Derry are invited to participate in the study which aims to identify these factors in order to find better treatments, diagnoses and, ultimately, a cure for MS. GMI also hopes to rollout additional study sites around the country in future. MS Ireland welcomes this exciting new study as an opportunity to further understand the causes and mechanisms of MS, which will hopefully lead to better management and treatment of the disease in the future. Further information on the study is available in the third issue of our research eZine, Interested volunteers should speak with their clinical team at one of the current research sites for more information. Further information: Read the full press release from Genomics Medicine Ireland RTE News
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