MS Ireland
Informing, Supporting and Caring for the MS Community
Date/Time: 13 May 2019 - 11:00 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 13 May 2019 - 10:00 to 12:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 13 May 2019 - 11:00 to 12:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 13 May 2019 - 12:00 to 13:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 13 May 2019 - 10:30 to 13:30
Organiser: Western Regional Office
Region: West
Date/Time: 13 May 2019 - 10:30 to 11:45
Organiser: South Kerry Branch
Region: South
Date/Time: 13 May 2019 - 10:30 to 11:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 13 May 2019 - 11:30 to 12:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 13 May 2019 - 13:00 to 14:00
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 13 May 2019 - 14:30 to 15:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 14 May 2019 - 12:00 to 13:00
Organiser: South East Region
Region: South East
Date/Time: 14 May 2019 - 11:30 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 14 May 2019 - 10:00 to 12:00
Organiser: Wexford South Branch
Region: South East
Date/Time: 14 May 2019 - 10:30 to 11:30
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 14 May 2019 - 11:15 to 12:15
Organiser: North East Region: Aoife Lambe
Region: North East
Date/Time: 14 May 2019 - 18:30 to 21:00
Organiser: Western Regional Office
Region: West
Date/Time: 15 May 2019 - 10:00 to 11:00
Organiser: South East Region
Region: South East
Date/Time: 15 May 2019 - 11:00 to 12:00
Organiser: Southern Region: Aideen Connolly
Region: South
Date/Time: 15 May 2019 - 12:00 to 13:00
Organiser: Southern Region: Aideen Connolly
Region: South
Date/Time: 15 May 2019 - 11:00 to 13:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 15 May 2019 - 10:30 to 11:30
Organiser: Western Regional Office
Region: West
Date/Time: 15 May 2019 - 11:30 to 12:30
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 15 May 2019 - 09:30 to 13:00
Organiser: MS South Kerry Branch
Region: South
Date/Time: 15 May 2019 - 14:00 to 15:00
Organiser: Mid West:John MacDonald Community Worker
Region: Mid West
Date/Time: 15 May 2019 - 13:30 to 14:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 16 May 2019 - 10:00 to 11:15
Organiser: Wexford South Branch
Region: South East
Date/Time: 16 May 2019 - 09:45 to 10:45
Organiser: Southern Region: Patricia Lucey
Region: South
Date/Time: 16 May 2019 - 10:00 to 17:00
Organiser: Western Region: Mags Ryan Community Worker MS Ireland
Region: West
Date/Time: 16 May 2019 - 10:45 to 11:45
Organiser: Southern Region: Patricia Lucey
Region: South
Date/Time: 16 May 2019 - 10:00 to 11:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 16 May 2019 - 11:30 to 12:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 16 May 2019 - 10:30 to 12:00
Organiser: North East: Pauline McKenna
Region: North East
Date/Time: 17 May 2019 - 10:00 to 11:00
Organiser: Western Regional Office
Region: West
Date/Time: 17 May 2019 - 09:00 to 11:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 17 May 2019 - 12:30 to 13:30
Organiser: North East Region: Aoife Lambe
Region: North East
Date/Time: 17 May 2019 - 10:00 to 18 May 2019 - 17:00
Organiser: East Wicklow Branch
Date/Time: 17 May 2019 - 14:00 to 16:00
Organiser: Southern Region Office: Aideen Connolly
Region: South
Date/Time: 17 May 2019 - 12:00 to 13:00
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 18 May 2019 - 11:00 to 12:00
Organiser: South East Region
Region: South East
Date/Time: 18 May 2019 - 11:00 to 13:00
Organiser: South East Region
Region: South East
Date/Time: 18 May 2019 - 12:00 to 13:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 17 May 2019 - 10:00 to 18 May 2019 - 17:00
Organiser: East Wicklow Branch
Date/Time: 20 May 2019 - 11:00 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 20 May 2019 - 10:00 to 12:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 20 May 2019 - 11:00 to 12:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 20 May 2019 - 12:00 to 13:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 20 May 2019 - 10:30 to 13:30
Organiser: Western Regional Office
Region: West
Date/Time: 20 May 2019 - 10:30 to 11:45
Organiser: South Kerry Branch
Region: South
Date/Time: 20 May 2019 - 10:30 to 11:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 20 May 2019 - 11:30 to 12:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 20 May 2019 - 13:00 to 14:00
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 20 May 2019 - 14:30 to 15:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 21 May 2019 - 12:00 to 13:00
Organiser: South East Region
Region: South East
Date/Time: 21 May 2019 - 11:30 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 21 May 2019 - 10:00 to 12:00
Organiser: Wexford South Branch
Region: South East
Date/Time: 21 May 2019 - 10:30 to 11:30
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 21 May 2019 - 11:15 to 12:15
Organiser: North East Region: Aoife Lambe
Region: North East
Date/Time: 21 May 2019 - 11:00 to 13:00
Organiser: Western Regional Office
Region: West
Date/Time: 22 May 2019 - 10:00 to 11:00
Organiser: South East Region
Region: South East
Date/Time: 22 May 2019 - 11:00 to 13:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 22 May 2019 - 10:30 to 11:30
Organiser: Western Regional Office
Region: West
Date/Time: 22 May 2019 - 11:30 to 12:30
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 22 May 2019 - 09:30 to 13:00
Organiser: MS South Kerry Branch
Region: South
Date/Time: 22 May 2019 - 14:00 to 15:00
Organiser: Mid West:John MacDonald Community Worker
Region: Mid West
Date/Time: 22 May 2019 - 13:30 to 14:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 23 May 2019 - 10:00 to 11:15
Organiser: Wexford South Branch
Region: South East
Date/Time: 23 May 2019 - 09:45 to 10:45
Organiser: Southern Region: Patricia Lucey
Region: South
Date/Time: 23 May 2019 - 10:00 to 17:00
Organiser: Western Region: Mags Ryan Community Worker MS Ireland
Region: West
Date/Time: 23 May 2019 - 10:45 to 11:45
Organiser: Southern Region: Patricia Lucey
Region: South
Date/Time: 23 May 2019 - 10:00 to 11:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 23 May 2019 - 11:30 to 12:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 23 May 2019 - 11:00 to 13:00
Organiser: Southern Regional Office: Aideen Connolly
Region: South
Date/Time: 23 May 2019 - 11:00 to 13:00
Organiser: Western Regional Office
Region: West
Date/Time: 24 May 2019 - 10:00 to 11:00
Organiser: Western Regional Office
Region: West
Date/Time: 24 May 2019 - 09:00 to 11:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 24 May 2019 - 12:30 to 13:30
Organiser: North East Region: Aoife Lambe
Region: North East
Date/Time: 24 May 2019 - 10:00 to 25 May 2019 - 17:00
Organiser: East Wicklow Branch
Date/Time: 24 May 2019 - 12:00 to 13:00
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 25 May 2019 - 11:00 to 12:00
Organiser: South East Region
Region: South East
Date/Time: 25 May 2019 - 11:00 to 13:00
Organiser: South East Region
Region: South East
Date/Time: 25 May 2019 - 11:00 to 12:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 25 May 2019 - 12:00 to 13:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 24 May 2019 - 10:00 to 25 May 2019 - 17:00
Organiser: East Wicklow Branch
Date/Time: 25 May 2019 - 18:30 to 26 May 2019 - 12:30
Organiser: Cork North West Branch
Region: South
Date/Time: 25 May 2019 - 11:00 to 13:15
Organiser: South East Dublin Region: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 25 May 2019 - 18:30 to 26 May 2019 - 12:30
Organiser: Cork North West Branch
Region: South
Date/Time: 27 May 2019 - 11:00 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 27 May 2019 - 10:00 to 12:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 27 May 2019 - 11:00 to 12:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 27 May 2019 - 12:00 to 13:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 27 May 2019 - 10:30 to 13:30
Organiser: Western Regional Office
Region: West
Date/Time: 27 May 2019 - 10:30 to 11:45
Organiser: South Kerry Branch
Region: South
Date/Time: 27 May 2019 - 10:30 to 11:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 27 May 2019 - 11:30 to 12:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 27 May 2019 - 13:00 to 14:00
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 27 May 2019 - 14:30 to 15:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 28 May 2019 - 12:00 to 13:00
Organiser: South East Region
Region: South East
Date/Time: 28 May 2019 - 11:30 to 12:30
Organiser: South East Region
Region: South East
Date/Time: 28 May 2019 - 10:00 to 12:00
Organiser: Wexford South Branch
Region: South East
Date/Time: 28 May 2019 - 10:30 to 11:30
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 28 May 2019 - 11:15 to 12:15
Organiser: North East Region: Aoife Lambe
Region: North East
Date/Time: 29 May 2019 - 10:00 to 11:00
Organiser: South East Region
Region: South East
Date/Time: 29 May 2019 - 11:00 to 13:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 29 May 2019 - 10:30 to 11:30
Organiser: Western Regional Office
Region: West
Date/Time: 29 May 2019 - 11:30 to 12:30
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 29 May 2019 - 09:30 to 13:00
Organiser: MS South Kerry Branch
Region: South
Date/Time: 29 May 2019 - 14:00 to 15:00
Organiser: Mid West:John MacDonald Community Worker
Region: Mid West
Date/Time: 29 May 2019 - 13:30 to 14:30
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Date/Time: 30 May 2019 - 10:00 to 11:15
Organiser: Wexford South Branch
Region: South East
Date/Time: 30 May 2019 - 10:00 to 17:00
Organiser: Western Region: Mags Ryan Community Worker MS Ireland
Region: West
Date/Time: 30 May 2019 - 10:00 to 11:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 30 May 2019 - 11:30 to 12:00
Organiser: North East Region: Pauline McKenna
Region: North East
Date/Time: 30 May 2019 - 11:00 to 16:00
Organiser: North East: Pauline McKenna
Region: North East
Date/Time: 30 May 2019 - 11:00 to 13:00
Organiser: Southern Region: Aideen Connolly
Region: South
Date/Time: 30 May 2019 - 10:00 to 21:00
Organiser: North Dublin Region: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 30 May 2019 - 12:00 to 15:00
Organiser: South East Dublin: Geraldine Dunne
Region: South Dublin And Wicklow
Date/Time: 30 May 2019 - 19:00 to 21:00
Organiser: Western Regional Office
Region: West
Date/Time: 30 May 2019 - 11:00 to 13:00
Organiser: MS Care Centre
Date/Time: 31 May 2019 - 10:00 to 11:00
Organiser: Western Regional Office
Region: West
Date/Time: 31 May 2019 - 09:00 to 11:00
Organiser: North Dublin: Sean Kinsella
Region: North Dublin And Fingal
Date/Time: 31 May 2019 - 12:30 to 13:30
Organiser: North East Region: Aoife Lambe
Region: North East
Date/Time: 31 May 2019 - 12:00 to 13:00
Organiser: Mid West Region: Mary McCusker
Region: Mid West
Local Authority and European Parliament Elections With Local Authority and European Parliament Elections around the corner, now is the time to raise local issues with candidates seeking your vote. MS Ireland are members of the Disability Federation of Ireland (DFI) and the Neurological Alliance of Ireland (NAI). We are supporting their campaigns to make disability and neurology top priorities for candidates in both the Local Authority and European Parliament Elections. We are asking you to get involved too! Local Authority Elections Accessibility Are there accessibility issues in your area? Are there uneven pathways? Are there pedestrian lights that don’t give you adequate time to cross the road? Think about the accessibility issues you face locally. Ask your local authority candidates to commit to ensuring local public services and buildings are accessible for people who live with a disability. Participation Are you aware if people living with disabilities are involved with current decision-making structures locally? Can your local candidate tell you about Public Participation Networks? Ask your candidate to commit to ensure that people living with disabilities are encouraged to take part in local decision making. Planning Is your local candidate aware of the United Nations Convention on the Rights of People with Disabilities (UNCRPD)? Do they know what changes need to be made locally to comply with this convention? Ask your candidate to commit to ensuring that your local authority publishes its implementation plan for the UNCRPD by 2020. Don’t forget to mention the MS Care Centre Business Case In addition to having the power to influence local change, candidates for local authority often have the capacity to raise issues with TD’s and Senators. If a candidate asks for your vote, please make them aware of the MS Ireland Care Centre Business Case and ask them to raise the issue with Elected Local Representatives. The Care Centre Business Case can be downloaded here European Elections European Parliament hopefuls are being asked to pledge support in a number of key areas; Accessibility & Equality Ask European Parliament candidates to commit to making products, services and infrastructure accessible to people with disabilities and to stop discrimination. Ask European Parliament candidates to commit to working at and EU level to ensure equitable access to treatments, services and supports for people with neurological conditions. Investment Ask European Parliament candidates to support the investment of European funds in persons with disabilities. Support Ask European Parliament candidates to support the aims and objectives of the Members of European Parliament (MEP) interest group on Brain, Mind and Pain. Ask your European Parliament candidate to work at EU level to increase awareness of neurological conditions as a major public health and social care issue. Ask candidates to commit to their support on Twitter using #DisabilityVotesCount and #LoveYourBrain2019 Further information: www.disability-federation.ie www.nai.ie
NUI Galway are recruiting Applications are invited from suitably qualified candidates for a part-time, fixed term position (20% FTE) as a Patient Representative Research Assistant with the Discipline of Occupational Therapy at the National University of Ireland, Galway. This position is funded by Health Research Board and is available from July 1st 2019. This is a specific purpose contract circa 30 months. Information on project: The post is an exciting opportunity to be part of a research study of a cognitive rehabilitation intervention for people living with multiple sclerosis. Some people with multiple sclerosis have cognitive symptoms (e.g. difficulty with memory, processing information, attention) that impact their daily lives. The lead researcher has developed a new occupational therapy programme for people with multiple sclerosis that aims to help people deal with these symptoms. The programme will be assessed in this study. How to apply: Applications to include a covering letter, CV, and the contact details of two referees should be sent, via e-mail (in word or PDF only) to Dr Sinéad Hynes at sinead.hynes@nuigalway.ie Please put reference number NUIG-079-19 in subject line of e-mail application.Or by post to Dr Sinéad Hynes, Lecturer in Occupational Therapy, School of Health Sciences, Áras Moyola, NUI Galway. Closing date for receipt of applications: Friday 31st May 2019 at 5.00 pm Interviews are planned to be held on 11th June 2019 All positions are recruited in line with Open, Transparent, Merit (OTM) and Competency based recruitment. National University of Ireland, Galway is an equal opportunities employer.
This week Mary Devereux talks about falling and how she is dealing with the impact of Primary Progressive MS on her life and the lives of her family members. I have fallen… I could fall up a stairs, down a stairs; going up a footpath and going down a footpath and often I have tripped on...nothing. My foot sticks to the ground, my ankle or knee will simply stop working and I fall. Sometimes I will jump awake from a sleep with the sensation of falling. Falls are part and parcel for many people with Multiple Sclerosis. Falls are something we endure but also work hard to prevent. Muscle weakness, spasms, coordination problems, foot drop and numbness are all common MS symptoms that increase our risk of falling. More often than not, falls are unpreventable. I used to have SO many more suit jackets but no trousers to match because they were the casualty of my many falls. The first reaction I have when I fall is one of embarrassment; the second is to get up as quick as I can and walk as fast as I can, not looking right nor left and hoping no one has seen me. These are my first reactions despite any pain I may be in. Some of my falls are my own fault, like when I am over-tired but still insist on carrying out a task instead of listening to my body. Then foot-drop hits and all of a sudden I am having a close encounter with the floor. Or if I am carrying too many things at once instead of slowing down and carrying out the task in a safer and more thoughtful manner (that’s a whole different conversation for another day!). When your tendency to fall is no longer funny to people, you see the worry on their faces. That worry often leads to attempts to protect you. It begins with “don’t climb that ladder” or “don’t go up to the attic”, then “don’t stand on the chair”... all things I would have done before diagnosis without batting an eyelid. Once I fell down the stairs, couldn't stop myself and heard the crunching of bones as I tumbled. The things I have been running away from I now have no choice but to allow them to be part of my life. They minimise the risk of falling and therefore the injuries I might get from falling. Things like a cane, a rollator, the bed rail, the non-slip mat on the bedroom floor, the second banister rail, the shower chair... the list goes on. I learned early on with this disease I had to help myself in order to survive; if my wellbeing and survival comes by way of special equipment, so be it. My latest addition to falling has been in the middle of the night. Sometimes I wake up from pain, try to sit at the side of the bed fully expecting my feet to be my anchor and all of a sudden my feet are sliding out in front of me. I know I’m going to hit the ground and there isn’t a thing I can do to stop it. I scream, wake the house and have to accept the help to get up. Then I spend all the time apologizing for it. What do I fear most about falling? The look of fear on my loved ones’ faces. The slow ebbing away of my confidence and independence. This progressive disease is a thief that comes any time of day or night and never leaves empty handed. The MS thief always takes a little bit of me with it.
Kiss Goodbye to MS on World MS Day Join us this World MS day (30th May) for our 9000 steps challenge to help support the 9000+ people living with Multiple Sclerosis throughout Ireland. It’s easy to join, wherever you live, whatever your fitness level, you can decide when and where you will complete your steps. You can choose to walk, run, dance, swim or even hop to complete your challenge. You can do it by yourself, with friends or family or get together a team with your work colleagues. Every step you take will represent your support for the 9,000 people living with MS in Ireland. Together we can take a step closer to providing more services and finding better treatments, and eventually a cure for MS. Help us make MS history! #KissGoodbyeToMS Get in touch Sign up online today or for more information email caitrionah@ms-society.ie
Ciara O’Meara will be spending the month of May in anticipation of Kiss Goodbye To MS campaign and reliving the good times at a gig in the RDS. Bring on the big hair Mr Bon Jovi! June 15th 2010 is the day I got my official diagnosis of Multiple Sclerosis. I made a promise to myself that very day that forever more, June 15th would not be a dark day or a day for despair or self pity. It would be a day of celebration. A celebration of the year passed, the achievements recognised and the tough days acknowledged. June 15th would be a celebration of Ciara, not of a diagnosis or of an illness. June 15th so far has consisted of spa days, breaks away, nights out or a box of Lindt chocolates and Netflix. And June 15th 2019 will be no different. Only that Mr. Jon Bon Jovi will be marking the day with me! Celebration & Contemplation While I make June 15th a celebration for myself, it’s also a day for contemplation, an opportunity to reflect on the world of MS in the year that’s passed. From new research being carried out to new medications approved or the development of advocacy and support groups, there has usually been more opportunities for understanding, acceptance and awareness of this chronic illness. When I stand in the RDS Arena on June 15th, rocking out with Jon Bon Jovi, of the 18,500 people around me, there will be up to 37 people living with multiple sclerosis. 25 of them will be women. 37 people with the same illness albeit different journeys and experiences. 37 people with hopes, fears, dreams and disappointments. 37 people from the MS Community who will require and benefit from support workers, physiotherapy, symptom management courses, newly diagnosed sessions, respite services and the MS information line. 37 people who wait for the licensing of new disease modifying therapies that will slow their disease progression and improve their quality of life and who wait patiently for a cure on the back of ongoing research and clinical trials. Kiss Goodbye to MS The Kiss Goodbye to MS Campaign is just what these 37 people and the 8,963 others living with MS in Ireland need to ensure these resources, supports and developments continue. Ireland’s annual opportunity to help ‘Kiss Goodbye to MS’ will run throughout the month of May with local and national events and activities. The campaign, calls on individuals, workplaces and groups to get creative to fund research and provide services for the 9,000+ people in Ireland with MS. So what are you waiting for? Check out the Kiss Goodbye to MS campaign and join the fight to make MS history. Step outside your comfort zone and dare yourself to do something fun, exciting, glamorous, weird or whatever, to raise money for vital research and services for people living with MS in your community and the 37 others in the RDS reliving their youth and rocking out to ‘Living on a Prayer’!
is a campaign about hope, that together we can raise funds to accelerate Irish and global research into MS and continue to provide services to over 9000 people living with MS In Ireland. Join the campaign NOW!
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