MS Ireland has formally committed to complying with the Statement of Guiding Principles for Fundraising
MS Ireland is fully committed to achieving the standards contained
within the Statement of Guiding Principles for Fundraising.
• Improve fundraising practice
• Promote high levels of accountability and transparency by organisations fundraising from the public
• Provide clarity and assurances to donors and prospective donors about the organisations they support.
The Board of MS Ireland have considered the Statement and believe we meet the standards it sets out. Where we have not complied with the Statement we have provided an explanation.
MS Ireland's report on our fundraising activities is available in our most recent Annual Report
We welcome your feedback on our performance via any of the contact points provided. Read our Feedback and Complaints Procedure.
The Statement of Guiding Principles for Fundraising is a guide to best practice developed by a steering group set up in response to the Charities Act 2009.
The Board of MS Ireland endorse the following "Donor Charter"
• As a charity seeking donations from the public, we, the Multiple Sclerosis Society of Ireland, (MS Ireland) aim to comply with the Statement of Guiding Principles for Fundraising.
• Our pledge is to treat all our donors with respect, honesty and openness.
• We commit to being accountable and transparent so that donors and prospective donors can have full confidence in MS Ireland.
• We promise we will effectively apply your gifts to use for their intended purposes.
• We commit that you, our donors and prospective donors will:
• Be informed of the organisation’s mission, and of the way the organisation intends to use donated resources.
• Be informed of the identity of those serving on the organisation’s governing board, and that the board will exercise prudent judgement in its stewardship responsibilities.
• Have access to the organisation’s most recent financial statements.
• Be assured your gifts will be used for the purposes for which they were given.
• Receive appropriate acknowledgement and recognition.
• Be assured that information about your donation is handled with respect and with confidentiality to the extent provided by law.
• Expect that all relationships with individuals representing the charity will be dealt with professionally.
• Be informed whether those seeking donations are volunteers, employees of the organisation or hired third party agents.
• Have easily available the agreed procedures for making and responding to complaints.
• Have the opportunity for any names to be deleted from mailing lists. MS Ireland mailing lists are not shared with third parties.
• Receive prompt, truthful and forthright answers to questions you might have of the organisation.
If you do have a comment about any aspect of our work, you can contact MS Ireland in writing, by telephone or email. In the first instance, your comment will be dealt with by our CEO. Please give us as much information as possible and let us know how you would like us to respond, providing relevant contact details.
Write to: Chief Executive, MS Ireland, 80 Northumberland Road, Dublin 4 Tel: 01 6781600 Email: firstname.lastname@example.org
The Statement of Guiding Principles for Fundraising sets out the following in relation to Disclosure:
“Donors have the right to be informed of the status and authority of those soliciting donations; for example, donors will be informed if fundraisers are employees of the organisation or third party agents”.
MS Ireland is open about whether those seeking donations on its behalf are volunteers, employees of the organisation or are third party agents. Anyone fundraising on behalf of MS Ireland must ensure that prospective donors are aware of their status, i.e. volunteers, employees or third party agents.
If or when a member of the public enquires about the employment standing of a fundraiser they must receive an honest and open answer. The standing in this case relates to whether or not a fundraiser is a volunteer, a paid employee of the charitable organisation or a third party agent working on behalf of the charity.
As a valued supporter of MS Ireland, the board know it is important that we facilitate any feedback or complaints that you may have. If for any reason, you should feel aggrieved then we will endeavour to do our utmost to make sure that we come to a satisfactory resolution. We feel it is important that we learn from our mistakes so your feedback is very important to us.
We are committed to ensuring that all our communications and dealings with the general public and supporters are of the highest possible standard. We listen and respond to your views so that we can continue to improve. We are committed to upholding the Statement of Guiding Principles for Fundraising available here , We welcome all feedback.
Therefore we aim to ensure that:
• it is as easy as possible to make a complaint;
• we treat as a complaint any clear expression of dissatisfaction with our operations which calls for a response;
• we treat it seriously whether it is made by telephone, letter, fax, email or in person;
• we deal with it quickly and politely;
• we respond accordingly - for example, with an explanation, or an apology where we have got things wrong, and information on any action taken etc;
• we learn from complaints, use them to improve, and monitor them at our Board.
If you have feedback or a complaint about any of our work you can contact our Chief Executive by email, telephone or in writing:
Ava Battles, Chief Executive, MS Ireland, 80 Northumberland Road, Dublin 4; Tel: 01 6781600; Email: email@example.com
If your complaint is received over the phone we will endeavour to have it resolved there and then (where possible), if it is received by email, fax or post we will acknowledge it within 7 days and do everything to resolve any complaints within 14 working days. If this is not possible, we will explain why and provide a new deadline.
If you are not happy with our response, you may get in touch again by writing to MS Ireland’s Chairman. The Chairman will ensure that your appeal is considered at Board level and will respond within two weeks of this consideration by Board members.
Finally, if you feel that you are not satisfied, we can direct you to an independent monitoring group who will assess your complaint in an objective manner.
Prize draw winners announced Following the prize draw on RTÉ's fab News2Day we are delighted to announce the winners of the 2018 MS Readathon prize draw! Ipad Winners Catherine Clinch, Scoil Bhride, Dublin Riain Flemming, Scoil Mhuire, Dublin Jacob Vaughan, St Brigids, Dublin Ciara Leahy, Scoil Ide, Galway Muireann Lambe, Cloonakilla NS, Roscommon Sarah Lukacova, Kinsale Community School, Cork Leon MacCartaigh, Gaelscoil Dara, Galway Alison Thornton, Ballymakenny College, Louth Rebecca O’Connor, Scoil Realt na Mara, Dublin Leah McDonagh, Allen NS, Kildare Headphone Winners - kindly sponsored by Panasonic David Mullarkey, Carrig NS, Tipperary Ryan Kavaige, Gaelscoil Ui Drisceoil, Cork Poppy Comerford, Rathgar NS, Dublin Siofra Mason, Munroe NS, Kilkenny Eabha McCoffey, Castletownsend NS, Cork Grace Nolan, St Laurences NS, Kildare Abbie Sweeney, Kilbarry NS, Cork Senan Miland, Marnocks NS, Dublin Conor McDermot, Our Lady's NS, Dublin Karoilna Gorzala, Tullow Community School, Carlow Cian Byrne, St Mary's, Wicklow Amber Donohoe Harbridge, Stratford NS, Dublin Cal Jackman, Portlaoise Educate Together, Laois Shane Doherty, Scoil Naomhh Fionán, Donegal Aidan O'Dunaigh, Gaelscoil Ros Eo, Dublin Brianne Farnan, Oatlands Primary, Co Dublin Lyla Roddy, Scoil Bhríde, Kildare Alice Ryan, Scoil Bhríde, Galway Jake O'Dathlaoich, Gaelscoil Nás na Ríogh, Kildare Erica Keddy, St Brigid's GNS, Dublin Florence Ross, SVdP Girls NS, Dublin Beth Ni Choibheanaigh, Gaeelscoil Charraig Uí Leighin, Cork Cathy O'Mahony, Crecora NS, Limerick Isabel Fleet, Galway Greta Patterson, Co Dublin Rachel Cleary, Tipperary Amal Salawu, Dubln Ella Monahan, Meath Abi Murphy, Meath Cliona Manning, Cork Thanks to everyone for taking part in the 2018 MS Readathon
This New Year, the MS and Me team will bring you more of the things you love as well as a few things you didn’t know you wanted. As we close the third week of 2019, it’s probably time to sweep “Happy New Year” away for another 11½ months. That said, we’d like to take this opportunity to let you know what you might expect from your MS blog this year. First, we wave a grateful goodbye to one of our original blog team, Helen. We wish her all the best as she continues on a career path she was able to take-up again in 2018. Her thoughtful posts, such as the very popular MS & the 2019 Budget, will be missed as much as her positive yet realistic outlook on living with multiple sclerosis. Good luck, Helen! The rest of the MS & Me blog team will look the same for the coming year with some additional guests. The blog itself (as well as the MS Ireland webpage), however, may look different by the end of the year. We are undertaking a long-awaited rework of the website and will take advantage of the opportunity to make the MS & Me blog easier to find, navigate, read and reply. We can’t say exactly when it will happen but, suffice it to say from the prototypes we’ve seen, when it does change, you’ll know! This year we’ve decided to expand on a popular feature we ran a couple of years back. Most months, beginning in February, we will have two bloggers – one man and one woman – co-write a piece on a topic which may have different takes depending on the person with MS’s sex. We’re calling the series “He said – She said”. Topics are set to include such hot buttons as dating, romance, having children after diagnosis, finances and more. We hope you enjoy and engage with our bloggers on these interesting topics viewed from different perspectives. We’re also going to delve into some of the “tough stuff” this year. We all grieve losses in this life. With MS we seem to have to go through some form of the grieving process every time we lose something else to the disease. We’ll have a series of blogs on the stages of grief for you this year as well. We’ll highlight some of the major MS events happening in Ireland and around the world as well as sharing our tips and thoughts of living your best life with this damnable disease along for the ride. The editorial team of MS & Me hope that you’ll enjoy the topics we’ve set out for the year. The cadre of bloggers you’ve come to read hope that you’ll continue to comment, share, and discuss the subjects with your family and friends. Knowledge is, after all, power. And the more of our allies who have the knowledge, the more power we as an MS community will have. Wishing you and your family the best of health. Cheers
What is the self care to wellness programme This is a six week self care management programme, 2.5 hours per week, for people living with ongoing health conditions. It can help you develop the skills you need to become an active self manager of your condition and live a happier life. Where: Castlebar Primary Care Centre When: commencing Tuesday, 5th of February 2019 Time: 10.30am - 1pm Who runs the programme The weekly sessions are facilitated by two supervised trainers. All of our trainers understand the challenges of living with on-going conditions and many use the very same health management techniques you’ll learn during this programme to cope with their own on-going health conditions. Who can take part Anyone living with an ongoing or long term health condition are welcome to register. How to register Visit https://www.selfcaretowellness.org/ Or Contact the programme coordinator Jackie Lynott 087 7185615 or (094) 9034980
Raising awareness of the invisible symptoms and unseen impact of MS. World MS Day 2019 will take place on 30th May. The 2019 campaign will be called ‘My Invisible MS’ (#MyInvisibleMS) and the theme is Visibility. My Invisible MS will raise awareness of the invisible symptoms of MS and the unseen impact of MS on quality of life. The campaign will give a voice to everyone affected by MS to share their invisible MS symptoms and express what you want others to know and understand about MS, in order to challenge common misconceptions and help people understand how to provide the right support. There are many ways to get involved in World MS Day and use and adapt the My Invisible MS campaign. You can take part in the campaign online and on social media, hold an event to bring people together for World MS Day, lobby your decision makers to make positive changes for people affected by MS…there are so many possibilities! We’ll be sharing more information and resources in Spring 2019. Watch this space! originally posted 7th January 2019
At the start of New Year 2019, Declan Groeger shares with us his plans for the year ahead. Read on for a plan of action we can all adapt to our own resolutions. 2019 is a new year; a year full of hopes and fears, a year full of aspirations and dreams and a year full of good intentions. But it is also a year that, without proper planning, will be filled with disappointments. John Heywood, an English playwright better known for phrases that are embedded in our psyche, is credited with the saying “Rome wasn’t built in a day”. This was modernised to the phrase “softly-softly-catchy-monkey” by Queen Victoria. Loosely translated, both these phrases mean that patience is important. The essential ingredients for success are realism, focus, planning and patience; each ingredient being of equal importance. Another trite adage alerts us to the importance of planning “By failing to prepare you are preparing to fail”, Benjamin Franklin. Realism is important for everyone but even more so for people living with Multiple Sclerosis; we must acknowledge our limitations and plan accordingly. To my way of thinking there is no point in targeting a climb to the summit of Mount Everest without setting a schedule of lesser achievements and waypoints on the journey. Focus is equally important. I find that maintaining focus for a long-term project can be difficult and to that end, I recommend the ‘buddy system’. Confide in someone; share your resolution and accept help and encouragement from your confidante. Write it down; having a goal in writing somehow makes it more real. Planning is essential and this ingredient incorporates patience. Antoine de Saint-Exupéry once said, "A goal without a plan is just a wish". Some goals seem much more difficult without intermediate targets and for me the inclusion of these waypoints make the challenge seem less onerous and more achievable; softly softly catchy monkey! A word of warning- planning should not be used as an excuse to procrastinate. Planning is essential but procrastination is the death knell for many good intentions. I’m only making one New Year resolution this year. In past years I would make a list and start off the New Year with the best of intentions and ultimately most, if not all, fell by the wayside. Time has passed and now more than 30 years after my diagnosis I have learned to be more realistic. I make one resolution and try to do it well. Attempting to do too much is foolish and this is true in any walk of life. Do less but do it well. My New Year resolution is to be kinder to myself. Why that one you might ask? The answer is simple; I haven’t been very kind to me and I need to be. What New Year Resolution have you adopted for 2019?
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