You can make a request under the Freedom of Information Act in writing or by e-mail by using the FOI Application Form. Click here to access the form or alternatively e-mail the FOI Officer with your request, contact details below. In the application, you must state that the request for information is sought under the Freedom of Information Act, 2014. If you want the information in a particular format (i.e. photocopy/hardcopy/softcopy etc) this should be stated. Requests for information should be as specific as possible to aid with identification of the records being sought.
If you would like assistance with your FOI request, please email firstname.lastname@example.org or contact the FOI Officer by telephone, Tel. (01) 6781600
Applications for information under the FOI Act should be submitted to:
Freedom of Information Officer
80 Northumberland Road
Tel: (01) 6781600
Fax: (01) 6781601
You may request access to information held by MS Ireland. However certain types of information are exempt from disclosure as follows:
A response to your request will be acknowledged within 10 working days. You will be informed of who is looking after your request. In most cases, you will be informed of MS Ireland’s decision on your request within 4 weeks of our receiving it. If the request is for a large number of records or MS Ireland receives a large number of requests for the same records, you will be informed before the expiry of the four week period that the time limit has been extended. You will be given the reasons for the delay in responding to your request.
When your request is for personal information, there are no charges unless there is a significant number of records.
In the case of requests which relate to non-personal information charges are applied for search retrieval and copying. The relevant section of the Act here is Section 27(2)
and these fees relate to:
(a) Determining whether it holds the information requested;
(b) Locating the information or documents containing the information
(c) Retrieving such information or documents
(d) Extracting the information from the files, documents, electronic or other information sources containing both it and other material not relevant to the request, and
(e) Preparing a schedule specifying the records for consideration for release.
In relation to the search, retrieval and copying charges there is a minimum threshold of €101 below which no search, retrieval and copying charges can be charged. Once the charge reaches the €101 full fees apply. There is a cap on the amount that can be charged and this is set at €500. These is also a further upper ceiling limit on estimated search, retrieval and copying fees set at €700 above which a body can refuse to process a request unless the requester is prepared to refine the request below the limit.
There are also fees which apply for an internal review under Section 22, this is €30 and €10 for medical card holders and their dependants. The fee for appeals to the Office of the Information Commissioner is €50 and €15 for medical card holders and their dependants.
If a request is granted the applicant will be informed in writing
If a request is refused, the applicant will be told in writing
Yes. If you are not satisfied with the decision made you can seek an internal review of the decision which is a complete and new review of your request by someone more senior. The request for internal review must be submitted in writing or by email within four weeks of the original decision.
If following this you are still not satisfied you can appeal this decision to the Office of the Information Commissioner, 18 Lwr Leeson Street, Dublin 2. Tel: (01) 6785222. Email: foi:ombudsman.irlgov.ie Visit www.oic.gov.ie
For further information on Freedom of Information, please click here
To access the Freedom of Information 2014 Act, please click here
This week Robert Joyce discusses the good days and the bad days. Chronic illness invades every part of our lives and it can be so easy to fall into a trap of grieving for what used to be. Snowflake. I never thought that I would class myself as part of this new category. It is a term that is used to describe the new generation, signifying that everyone is different. Unique. Special. Beautiful. Multiple Sclerosis has so many variations of how it affects the people that have it; MS can definitely be called a snowflake disease. In the last four years, my health has changed. My Multiple Sclerosis raised its head, announcing its return by adding extra weight to my right leg and placing gloves on my hands that contain thousands of pins and needles. It woke up because of a minor car accident that shook this beast from its slumber. Accompanied by a headache that since then has never abated. Chronic illness can and does, invade every part of your life. Work suffers, testing your relations with loved ones and your mental state can transform from happy to maudlin in an instant. Your mind brings up memories of days when you could walk for hours, or become immersed in learning something new. Now, these are not possible. Living with longing for the past only leads to despair. I have travelled this journey and understand how easy it is to fall into this cauldron of lost abilities. My toe has been scalded many times as I started to slide into this boiling broth. Now I know how this feels and have found a way of lifting myself away from this bubbling pot. I’ve placed my damaged body back on a path with the sun warming my back by focusing on my abilities, on the friendships made while walking this road. Focusing on the opportunities that I have, the abilities that I learned, and newfound friendships, has created vital, renewing times for me. Lost mobility has put me in front of my laptop and now I write. Seeing that the creativity that I need to feel fulfilled can be met by using these keys, I now share my stories to an audience that spans the world. Singapore, Peru, USA and even Cork are all places that my words have been read. My eyes once again sparkle with excitement as I wonder what new post I shall write. I share my story with the world and I know it is listening. In this uncertain future that I have as a result of my medical condition, I know that those dark, cauldron days will return. However, those days are a stark contrast to the days filled with happiness and gratitude for the new abilities that I have learned. I am secure in my belief that "the dark days make the bright days brighter". Discover more from Robert Joyce on https://a30minutelife.com/
and the lucky winners are... The draw for our Annual Summer Raffle took place on Friday, 6th July 2018 at our National Office. Women’s Rugby International Nora Stapleton joined us for the draw on the day, alongside our lovely Fundraising Executive Sally Spearman We are delighted to announce this year’s winners: 1st Prize – Raymond McCarthy, Limerick 2nd Prize – Teckie Brett, Tipperary 3rd Prize – Jane O’Halloran, Dublin. Congratulations to all our winners and a huge THANK YOU to everyone who supported this year’s Summer Raffle. The funds raised will make a huge difference to services in our Care Centre.
This week Helen Farrell talks delicious, nutritious food and current food trends. Read on for her take on MS, gluten and the adjustments she (and her family) have to make so she stays healthy and well. “Gluten! Such a poison” said the man at the café till. “How”? In what way” I asked, curious to know his reasoning. “You know, it’s really bad for you, causes so many problems in the body” he said. “Yeah”, I said vaguely, glancing at my gluten-free chocolate muffin loaded with sugar and oil. He looked like he worked out, Instagrammed and used sunbeds. I don’t. It made me think a bit about the whole gluten-free (GF) trend. Seems like there are lots of people following the GF diet without truly knowing why; such a lot of hassle when you don’t medically need to. If you ask people their reasons for going GF, some say they feel better without gluten, some MSers think their MS will be alleviated, but the bottom line for many is because they think it’s bad or they’ll lose weight by going GF. As a person with Coeliac disease I can assure you that a GF diet can be very unhealthy if you only live on GF chocolate, crisps and pizza. A normal diet can include plenty of gluten and still be very healthy. It was a shock when my husband mentioned that dealing with my Coeliac disease was more hassle than MS. He wasn’t being unkind. In terms of impact on things, he was more aware of Coeliac disease. When we want to stay somewhere, join with family for a meal, for shopping, to even prepare our food and avoid cross-contamination in the kitchen (a crumb will cause immune-damage to a true Coeliac), it’s more present for him. But then I realised that it’s not just him that feels that. Most people make more of an allowance for my Coeliac disease than my MS, which is mostly invisible. MS is horribly, constantly present to me, but like an iceberg, the bulk of it unseen by most (but maybe I’m glad it is). MS feels like a relentless Terminator robot, coming for me without cease, trying to annihilate me. Even when I try to escape, it melts down and comes at me afresh. Coeliac disease is merely an irritation. In fact, it seems like the perfect disease; it’s easily fixed – just avoid gluten. Now if MS were the same, I’d be a happy woman. There is no diet that is proven to alter the course of MS, at this time. Some people favour the Swank diet, Paleo, Vegan, or “Best Bet” but with no definitive proof of any specific diet helping people with MS, I’m going to keep enjoying my food as it is. Food is such a pleasure! If we follow general dietary principles for good health, it will help us live well with MS. Perhaps my Nana was right when she said “a little bit of what you like, does you good” but in my case, not gluten. Coeliac Society of Ireland: signs and symptoms Diet and MS, Pavan Bhargava MD, National Multiple Sclerosis Society (US)
Calendar images wanted... MS Ireland is creating a 2019 calendar and is asking photographers to submit their work for consideration. We’re looking for images based on the theme “As Time Goes By”. The passing of time can be recorded by photography in many ways. A long exposure can be used to capture the effect of time on an image, whereas a short exposure is used to capture an instant in time. The theme of this competition is very open and broad with a lot of scope for creativity. We look forward to seeing your interpretation. Read Terms and Conditions 13 images will be selected in total, 12 to appear within the calendar and one will be chosen for the cover. In addition to the calendar winning entrants will see their image in the following places: In our MSnews magazine which goes to 5000 members, clinics and health professionals around the country In a special edition of our electronic newsletter 'eNews' Throughout our social media profiles – Facebook, Twitter and Instagram So get snapping and enter our competition today! ***Closing date for entries: 5pm on Friday August 10th 2018*** Get in touch For more information contact Sally Spearman: email email@example.com
MS Ireland publish Pre-Budget Submission for 2019 Our key asks are: Investment of €3 million in neurology services Investment of €4.5 million in neurorehabilitation services Investment of €11 million in community services for people with disabilities – including Personal Assistants and Home Support/Home Help €13.75 million increase for the Housing Adaptation Grant scheme Automatic entitlement to a GP Visit Card for those in receipt of the Long Term Illness Scheme Raise the level of the Medical Card earnings disregard for people on Disability Allowance or on Partial Capacity Benefit associated with Invalidity Pension as per the recommendations in the 2017 ‘Make Work Pay’ report Ring-fence savings from the 2016 IPHA Agreement for spending on access to new and innovative medications Read our Pre-Budget Submission here This submission has been prepared by Harriet Doig, Information, Advocacy and Research Officer. Questions and comments can be directed to firstname.lastname@example.org
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