You can make a request under the Freedom of Information Act in writing or by e-mail by using the FOI Application Form. Click here to access the form or alternatively e-mail the FOI Officer with your request, contact details below. In the application, you must state that the request for information is sought under the Freedom of Information Act, 2014. If you want the information in a particular format (i.e. photocopy/hardcopy/softcopy etc) this should be stated. Requests for information should be as specific as possible to aid with identification of the records being sought.
If you would like assistance with your FOI request, please email email@example.com or contact the FOI Officer by telephone, Tel. (01) 6781600
Applications for information under the FOI Act should be submitted to:
Freedom of Information Officer
80 Northumberland Road
Tel: (01) 6781600
Fax: (01) 6781601
You may request access to information held by MS Ireland. However certain types of information are exempt from disclosure as follows:
A response to your request will be acknowledged within 10 working days. You will be informed of who is looking after your request. In most cases, you will be informed of MS Ireland’s decision on your request within 4 weeks of our receiving it. If the request is for a large number of records or MS Ireland receives a large number of requests for the same records, you will be informed before the expiry of the four week period that the time limit has been extended. You will be given the reasons for the delay in responding to your request.
When your request is for personal information, there are no charges unless there is a significant number of records.
In the case of requests which relate to non-personal information charges are applied for search retrieval and copying. The relevant section of the Act here is Section 27(2)
and these fees relate to:
(a) Determining whether it holds the information requested;
(b) Locating the information or documents containing the information
(c) Retrieving such information or documents
(d) Extracting the information from the files, documents, electronic or other information sources containing both it and other material not relevant to the request, and
(e) Preparing a schedule specifying the records for consideration for release.
In relation to the search, retrieval and copying charges there is a minimum threshold of €101 below which no search, retrieval and copying charges can be charged. Once the charge reaches the €101 full fees apply. There is a cap on the amount that can be charged and this is set at €500. These is also a further upper ceiling limit on estimated search, retrieval and copying fees set at €700 above which a body can refuse to process a request unless the requester is prepared to refine the request below the limit.
There are also fees which apply for an internal review under Section 22, this is €30 and €10 for medical card holders and their dependants. The fee for appeals to the Office of the Information Commissioner is €50 and €15 for medical card holders and their dependants.
If a request is granted the applicant will be informed in writing
If a request is refused, the applicant will be told in writing
Yes. If you are not satisfied with the decision made you can seek an internal review of the decision which is a complete and new review of your request by someone more senior. The request for internal review must be submitted in writing or by email within four weeks of the original decision.
If following this you are still not satisfied you can appeal this decision to the Office of the Information Commissioner, 18 Lwr Leeson Street, Dublin 2. Tel: (01) 6785222. Email: foi:ombudsman.irlgov.ie Visit www.oic.gov.ie
For further information on Freedom of Information, please click here
To access the Freedom of Information 2014 Act, please click here
Kiss Goodbye to MS, 18th - 21st May with Costa We are delighted to announce Costa are joining MS Ireland to help Kiss Goodbye to MS. The weekend of May 18th - 21st will raise awareness of Multiple Sclerosis and funds for MS research. Hope to see you there!! Drop in to a participating store near you & have a brewtiful day! #kissgoodbyetoMS #bringinguscloser
This week the MS and Me AnonMS blogger, a health care professional, shares with us an insider’s perspective on disclosure. Does disclosing MS status lead to the condition overshadowing all other aspects of a person’s life and reduce them down to a diagnosis? There are times when I am tempted to mention it. Particularly when I’m having a bad day and someone in work is complaining about their back pain or their thyroid issues or their respiratory problem. I can have a brief fleeting fantasy of myself smiling and nodding and chipping in with “Well, with my multiple sclerosis…”. That’s as far as the fantasy ever goes though. Because after that bombshell I know there would be shocked faces, stammered words and the overwhelming sense of panic that I’ve dropped the explosive and can’t undo the damage. It’s not that I feel their health issues are not serious or not problematic. They just all seem so much safer and palatable to discuss over morning coffee. So, I make sympathetic noises and say nothing. I work in healthcare, so I can see the health system from both perspectives. My colleagues are wonderful, kind and caring people but the problem with working in healthcare is that our knowledge of a condition can be best understood by that sad case study or this complex patient. Our vision is often distorted by our circumstances. We tend to see people at their lowest point and on their worst day, when staying at home isn’t an option and forget about the many other days when they were coping and managing just fine. Worst case scenarios tend to overshadow the “living well” in our minds. This is problematic for me because, were I to tell anyone in work about my diagnosis, I know their understanding would be coloured by a previous interaction or difficult discharge that may have absolutely no bearing on my circumstances. Yet this will be their most memorable reference and example of MS. I know they would paint my outlook with the same brush whether they realise it or not. People with MS are still very misunderstood and pitied. It can have the ability to overshadow all other aspects of a person’s life and reduce them down to a diagnosis. I have seen people rebranded as sad anecdotes and cautionary tales. I don’t want that to happen to me. I am generally not someone who wallows in self-pity or spends time wishing that things could have turned out differently. My diagnosis gave me the drive to do the things and see the places I had been putting off. The next relapse could be closer than I think and I don’t want to look back and wish “if only I had…”. If people find out I have MS I want them to be surprised. I want them to have had the opportunity to see me, without the distraction of MS, as someone who achieved a lot and was a good colleague or friend. I want people to see me without those two letters blocking their view.
James Tracy, Leinster and Ireland rugby player, tells us about his sister Sara-Jane Tracy and how much she inspires him. “Family is a unique gift that needs to be appreciated and treasured, even when they’re driving you crazy, which happens a lot when you're the youngest and only boy with two sisters!!. As much as they make you mad, annoy you, put you back in your box from time to time, these are the people who know you the best and who love you the most. As the saying goes 'you don't know what you've got till it's gone', it's true, but we are all guilty of taking life's gifts for granted. For my sister Sara-Jane, being diagnosed with MS pales in comparison to being told she couldn't do what she loved anymore. Horses were not just a hobby for her, from an early age they were her outlet, her job, her life. Through diet, exercise, hard work and sheer determination (she gets her stubbornness from the mother!), she proved the experts wrong and was back on the horse in a matter of months after being told she would never ride again. Like everyone, she has her good days, and she has her bad days. I will never fully understand or feel the struggle she endures every day. What I do know, is the journey she has embarked on. From the lowest lows of not being able to dress herself, having to learn how to write again to losing her kidneys early this year, to the highs of getting to ride again whilst juggling a strict dialysis schedule, incredibly she is now back competing. My sister is not only someone I love with MS, she's someone I admire.” Do you love someone with MS? Then spread the love, put those thinking caps on and hold a Kiss Goodbye to MS fundraiser this May! Now is the time to rally your friends to support MS research, help fund our services and get creative. Whether you want to hold a morning tea, run a marathon, throw a movie night, or even fire walk, your fundraising options are endless and no idea is too crazy! Register now and hold a fundraiser to help us get closer to a cure for MS. www.kissgoodbyetoms.ie
This week, in a letter to her nearest and dearest, Willeke Van Eeckhoutte puts down in words how she really feels. “What do you want me to say?” Dearly Beloved, What do you want me to say? What is it you don’t understand? When someone like you says, "Well, what do you want me to say?" during moments when I feel less than cheerful, it sounds like a rejection. Not just of me, but of your understanding of what I, and we, have been going through for the past 13 years. After all this time, all the wisdom we have gained, we could be the writers of the largest MS encyclopaedia! Instead, being asked that question sounds like a betrayal. It’s like you’re using the illness I never asked for as a slur against me. The truth is, I could write you a hundred different letters and a thousand expert explanations about my symptoms and my thoughts on all those shiny plaques on my MRI images. Nonetheless, I often think, "How can you possibly relate to my life if you don’t have MS?But, with all its intricate, demeaning and unpredictable symptoms, how could I ever expect you to?" The answer is, you honestly cannot know what it is to be me, and this is not my rejection of you, far from it. But, I do need to plea for your insight, patience and empathy. Just as I am struggling to find the words in this letter, MS is an ever-changing plotline that forces me to reinvent my life’s storyline as we speak. When I snap at you, I don’t mean to. More to the point, you were probably not the problem. Like when slamming a door in anger, the doorframe, the wall or the house aren’t ever reasons for the action. Sometimes I am absolutely worn out, totally exhausted because of my illness. This exhaustion feels even more pronounced when people express how they don’t understand me. I’m tired of the illness that has me acting in ways I normally wouldn’t. I carry an imperfect brain because of illness with a fickle revolving-door manifestation. It causes me to feel claustrophobic within myself. I know that keeping up with an ever-changing illness is as challenging for you as it is for me. I also know that there are times when you’d rather be somewhere else instead of being near me. What I want you to get is I don’t wallow in self-pity nor do I jump up and down in elation because I was diagnosed with this obnoxious illness. MS has impacted so many aspects of my life, it is part of what makes my life what it is today. Makes me how I am today. Flawed? Yes. Fickle? Perhaps. Happy? I sure am! Hopeful that you would understand me? Absolutely. What I ask for is simple but it isn’t easy. You are part of my walk through life and am glad to have you with me. When you feel exasperated by what I say or do, please step into my shoes with me for one minute and we can work out what’s really going on. Lots of love, Willeke Please don't forget to check out Willeke's blog Ireland, Multiple Sclerosis and Me
Balloon launch and music to mark World MS Day Cllr Francis Timmons in Partnership with the Dublin West ''Brendan Kenna'' MS Ireland Branch will host a balloon launch & music at 7.30pm outside in the Waterside Carpark to mark World MS Day on Wednesday, 30th May. Followed by light refreshments. All welcome! Former Branch chair and local councillor , Cllr Timmons says '' Thankfully Research is bringing us closer to ending MS. To reach this we need to work together as a worldwide MS community to find ways to improve life with MS now and end MS forever. The #bringinguscloser campaign is about connecting people affected by MS with those involved in MS research, including scientists, students, nurses, fundraisers, volunteers, and more. It's a chance to come together to celebrate what we've achieved in MS research so far, and share our hopes and dreams for the future. One of the former Chairpersons of the Branch the Late Brendan Kenna said make the most of life and least of MS and it's a fitting quote as we celebrate World MS Day 2018 '' Cllr Timmons says '' I also want to use this World MS Day event to Honour former Chairperson of the Dublin West ''Brendan Kenna'' MS Ireland Branch Michael Fox who sadly passed away 18th February 2018 He is sadly missed by his family and many friends and colleagues in the community and voluntary sector including the Southside Partnership, ACTS and the Multiple Sclerosis Society. He was actively involved in the branch in many roles and contributed a huge amount to the MS Community, I was very honoured to have served on the Dublin West ''Brendan Kenna'' MS Ireland Branch with Michael '' Current Branch Chair Gary Connolly says '' The last year for the branch has been really hard loosing Michael Fox, the branch has suffered the loss of a great man, Michael was a huge part of the branch and his tireless work and commitment will never be forgotten, we are working hard to keep the branch going, the branch really needs support from people in the areas of West Dublin in any way, shape or form, either helping with fundraising or coming on the committee to help keep up the good work and ensure that the branch continues to make a difference to people with MS in the West Dublin area for the next 26 years'' Branch member Angela Connolly who lives with MS says '' I am living with MS for 10 years and it does not define me it is part of my life, not my whole life and I have to adjust my life to live with the illness as part of me, the branch is very important to many people with MS providing practical supports I remain very positive about the future as medication is all the time improving'' For further information contact Cllr Francis Timmons 087 286 9315 or Gary Connolly 085 888 7466
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