MS & Me

On the eve of World MS Day, let’s talk about the importance of staying connected and mending those broken connections

The importance of connections cannot be overstated, and many people take them for granted. It is often confused with Fear of Missing Out (FOMO) Syndrome. Joni Mitchell sums it up beautifully in her song “Big Yellow Taxi” –

“Don't it always seem to go
That you don't know what you've got
Till it's gone…”

I will always remember the day my MS was diagnosed. Summer of 2010. It was a hot one.

I’m late. I schedule meetings and forget about them. I double book myself for coffee dates. I overcommit to events clinging to the unrealistic expectation that I can do it all. My life is a perpetual cycle of semi-organised chaos. Time management is my Achilles heel, a mirage glittering in the distance, just within reach but somehow unobtainable. I have always found it incredibly hard to stick to schedules, but brain fog means it’s become substantially worse. I have taken living for the now to the extreme believing that every day I wake up feeling well is limited and I’m on borrowed time. This urge to do all of the things all of the time is accompanied by latent procrastination which just adds an extra dose of panic to my entire existence. This inevitably leads to punishing guilt.

Multiple Sclerosis (MS), Motor Neurons Disease (MND), Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Guillain-Barré Syndrome (GBS)…an array of chronic illnesses, with varying abbreviations, different treatments, trajectories and yet a multitude of similarities.

All of these illnesses involve damage to the Central Nervous System (CNS) in some shape or form and the initial presentations of weakness, pins and needles, double vision and fatigue can be the workings of any and all of these conditions. Is it any wonder that MS take its time in a diagnosis? There are so many other options to be ruled out before MS can be ruled in. So many opportunities for both a missed diagnosis and a mis-diagnosis. I have always considered my MS to have been somewhat of an evolutionary diagnosis – a process of elimination by which to reach a final conclusion.

Health is a crown worn by those who are well and seen only by the sick.

                                                                                                                       Sudanese proverb

If I had it all over again… the phone call that confirmed that I had Multiple Sclerosis, and the subsequent 11 years, would I deal with it any better? Could I have made my journey to this point any easier? Were there ways to stop the mental and emotional carnage along the way? Would I ever stop feeling guilty? What would I say to myself? What would I say to me, to that Mary? It would go something like this…

*Multiple Sclerosis is an expensive disease. Find out how to cope on our next Unspeakable Bits webcast*

“Money”, as characters in the Kander and Ebb song from Cabaret quip, “Makes the world go round.”  And while multiple sclerosis doesn’t stop our world from spinning, it can reverse its polarity.

Our third installment of The Unspeakable Bits From a Life with MS airs on Thursday, 30th of March.  This month, we’re talking about the ‘earth-turning’ and normally avoided topic – Money.

Everyone knows that feeling when you wake up in the morning and you just don’t want to deal with the day. Maybe you have been working too hard, been too busy or are feeling a little down or unwell. Life can be exhausting; we all feel overwhelmed at times and need a well-deserved day to down tools and just be. It is certainly not an issue exclusive to people with MS or indeed any chronic illness. I do know however that it is becoming a far more regular feature in my life at the moment and I’m not sure how to feel about that. What happens when that well deserved ‘day’ of rest becomes every day? Is that a bad thing?

My Cog/Brain Fog and I have a temperamental relationship. Cog-fog is short for cognitive fog and is one of the invisible symptoms of MS. It can cause issues with concentration, memory, attention levels and even processing information. As we know Multiple Sclerosis is a disease of the central nervous system (brain and spinal cord). It also causes inflammation. In MS the signals and paths used between brain and body can misfire. Our brains have to work extra hard and this can cause our brains and bodies to become fatigued; because we have to try harder and use more energy than a person without MS, it can impact our cognitive function. 

I swear sometimes in life I am the unluckiest person going. My mother has said so often, “Katie, if it wasn’t for bad luck, you would have no luck at all!”

There are times when I look at my life and see a series of unfortunate events. I would write a book about it but there is already a book with that title! One time the doctor even said she had never seen the side effects of a medications happen to anyone before and guess who it happened to?? Yes, me! The doctor was completely shocked when my blood work came back showing the results. I just told the doctor “If it has to happen to someone it will be me.”