MS & Me

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Grace Kavanagh 2021
Grace Kavanagh
13 Jun 2024

Grace Kavanagh and A Better Me?

This blog title gives me anxiety. What does a “better me” mean? Should I be writing an article like the many I’ve seen where people tell stories about how better their life is since MS diagnosis and how much they have achieved? People climbing mountains or running marathons? I have read a lot where people seem grateful for MS. I’m happy for them but let's get one thing straight from the start - I am not grateful for my diagnosis. MS has in no way improved my life. It sucks and any of the positive things that have come from it, like my learning mindfulness and becoming a calmer person, I like to think I would have discovered in time anyway. 

Yvonne McBennett
MS & Me Guest Blogger

30 May 2024

MS & Me Guest Blog: We Do Belong and We are Not Alone

'The wind beneath my wings’: MS & Me Guest Blog Yvonne McBennett as part of World MS Day Campaign 'My Diagnosis' shares her personal story of being diagnosed with MS, the initial shock and the impact on her life and her family. Through her resilience and the support of MS Ireland, she discovers a sense of belonging

guest blogger
16 May 2024

Guest MS & Me Blog from Stefan

My name is Stefan I'm 32 and live in London. I was diagnosed with MS in 2017. I am a teacher, a poet and a huge swimmer. I hope you enjoy this poem and also hope that you know that you are not by yourself in dealing with MS. I wrote this poem because my friend thought it would be a good idea and that it would help me. He was right and now I want to share my experiences with you. Always remember you are not alone! Enjoy the poem. 

Picture of Nadia
Nadia Anshasi
18 Apr 2024

Nadia's Tysabri Thursday Update

Regular readers of MS and Me will have previously learned about my recent switch from Copaxone to Tysabri and all of the upheaval that it brought to my life. While I feel very fortunate to be able to access a second- line treatment, it encompasses a new set of side effects and concerns.

MS & Me Blogger Emma
Emma Valentine
11 Apr 2024

Navigating life, MS and mental health

Once the initial shock of an MS diagnosis has lessened somewhat, I think everyone begins to realise that MS is not just a physical journey; it’s a profound mental and emotional voyage that affects nearly 2.8 million people worldwide. This chronic, often disabling disease of the central nervous system has a notorious unpredictability, making its impact on mental health as significant as its physical impacts. 

Joan
Joan Jordan
28 Mar 2024

How MS Piqued My Interest in Ethics

Often people ask me what I do all day given that I don’t have a full-time job anymore. I assume the question is coming from a positive place - that there is a genuine interest in how many chronically ill people spend their days. If we don’t talk about these things, then we miss the chance to clear up any misconceptions.

Willeke Van Eeckhoutte 2021
Willeke Van Eeckhoutte
21 Mar 2024

Neurology waiting room, 10 years later

Ten years ago, while waiting for a neurology appointment at Beaumont Hospital, I wrote a heart-wrenching blog post about the unpredictability and unfairness of having multiple sclerosis. Next month, I will go back to the scene of the crime - and in the same month I received my diagnosis, no less.

 

Rosie Farrell
Rosie Farrell
07 Mar 2024

A Letter to My Husband

Dear Niall,

Eight years ago I held your hand on a still May morning as we set off on our third Darkness into Light walk for Pieta House, a charity that we both owe a lot to. I knew our whole world was about to change. After three weeks in hospital the previous October, having undergone every test and multiple lumbar punctures, the threat of those two words clung to everything - Multiple Sclerosis.

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