MS & Me

Displaying 1 - 10 of 372 Articles
Niamh McCarron
Niamh McCarron
29 Jul 2021

MS, COVID-19 and remote working

Niamh McCarron says people with chronic illnesses and disabilities have been asking for remote working for years, often getting told that it can’t be supported, for a whole list of reasons

Fergal Hughes
Fergal Hughes
15 Jul 2021

My MS today compared to my MS when I was diagnosed

I was diagnosed with MS twenty-five years ago last January.

Twenty-five years! A full quarter of a century!

So, what’s the difference between now compared to the day of my diagnosis? That day in 1996 I was pretty normal, with a very slight numbing sensation in my right shoulder and down my right arm. Today, MS has taken a significant toll on me, leaving me with fatigue, brain fog, a bad (*very* noticeable) limp in my right leg and very frequent bouts of extreme facial pains.

Rosie Farrell
Rosie Farrell
01 Jul 2021

Healing brushstrokes

The paints dance across the page, running into each other in ways you hadn’t planned but looking all the more beautiful for it.

It’s like an analogy for life really. No matter what way you plan, life will do its own thing but that doesn’t mean it’ll be any less beautiful and worthwhile

Christina
Christina McDonald
24 Jun 2021

Father's Day

This year Father’s Day for me is bittersweet. Last May, I lost my father suddenly aged 60. His departure from this world was shocking and just like MS, it came in the blink of an eye and my whole life changed.

Mary Devereux July 2020
Mary Devereux
17 Jun 2021

Access and MS

When I was asked to write this piece on access my head immediately spun. There are so many topics to choose from such as access to parking, buildings, medications, services …the list is endless!
 

ln the end I chose how we were accessing the services we need in the new world we are going to be living in. This virus came from nowhere and ripped through our communities.   Our lives have been turned upside down and we’ve had to find new ways of living. The question we need to ask is will some of these changes stay with us even after the pandemic has passed?

Dearbhla
Dearbhla Crosse
10 Jun 2021

Things I Wish I Had Been Told When I Was Diagnosed With MS

Allow Yourself to Grieve

I trudged on in complete denial for the first four months after the shock of my MS diagnosis. Overloaded with a host of new symptoms, I felt angry for being sick. A guilty narrative played over and over in my head like a depressing Moby track: If only I had taken better care of myself, ‘I’ wouldn’t have created more lesions. I remember going to a restaurant and having complete sensory overload. I became so overheated I had to strip off in the loo and splash myself with water like a complete lunatic.

MS & Me Bloggers Nadia Christine and Maggie
Christine Murphy
03 Jun 2021

Carer's week

Are you one of Ireland's 391,000+ carers? Knowing that you are part of this large cohort of society may not be that comforting if you may feel isolated in this role.  Or you may not identify yourself as a carer but simply do what needs to be done for your spouse/partner/child/family member with MS. But you are not alone.

Robert Joyce 2021
Robert Joyce
06 May 2021

Assistive Technology

This week Robert Joyce shares his experiences of using assistive technologies and how they help to manage his day to day life.

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