The research explored peer support needs and engagement among people with MS, and how these relate to overall wellbeing. The study involved 218 adults living with MS in Ireland and was developed with direct input from people with lived experience of the condition.
Key Findings
The study found that many people living with MS report a clear need for peer support, particularly those who are newly diagnosed or living with higher levels of disability. Despite this, actual engagement in peer support — whether in person or online — was generally low.
One of the most significant findings was the strong relationship between loneliness, social support and wellbeing. The research showed that loneliness and reduced social support together accounted for approximately 40 per cent of the variation in wellbeing among participants. While in-person peer support was associated with slightly higher wellbeing, broader social support and reduced loneliness were the strongest contributors to positive outcomes.
Why This Matters
Living with MS can be isolating, and this research reinforces the importance of meaningful social connection alongside medical care. While peer support is clearly valued, the gap between need and participation suggests that barriers remain, whether practical, emotional or related to accessibility.
The findings underline the importance of developing and maintaining supportive environments that help people living with MS feel connected, understood and supported throughout their journey.
MS Ireland’s Role
At MS Ireland, we recognise the vital role that connection and community play in living well with MS. Through our information services, peer support opportunities, programmes and regional supports, we aim to reduce isolation and ensure people affected by MS across Ireland can access the support they need.
We welcome research such as this, which helps inform and strengthen services and highlights the lived experience of people with MS.
Read the Full Study
The full article, “Peer support needs and engagement among people with multiple sclerosis: Associations with social support, loneliness and wellbeing”, is available via the Journal of Health Psychology.
https://journals.sagepub.com/doi/full/10.1177/13591053251392873