Get Involved in MS Research
MS Ireland helps researchers with their projects by offering advice, data and access to our MS community. We encourage people with MS to get involved in research that is ethical, appropriately organised by a recognised institution and sanctioned by that research authority.
Exploration of Nutrition and Multiple Sclerosis (MS): persons with Multiple Sclerosis (pwMS) attitudes and perceptions regarding nutrition as a lifestyle behaviour in MS management
We Need You!
Elaine Doran, a researcher at the Atlantic Technological University Sligo, is conducting research to examine persons with MS (Multiple Sclerosis) attitudes and perceptions concerning nutrition and identify if there are appropriate supports for people in this area.
MS effects 9,000 people across Ireland and has been shown to impact on an individual’s quality of life. There are many proven treatments in the form of disease modifying therapies, that can have a positive effect on MS, whereby progression can be stunted and relapse rates decrease.
An area of significant interest to people living with MS is diet and nutrition, and how this could potentially impact the course of the disease. Studies performed outside Ireland have shown that people feel there is a lack of dietary advice provided when diagnosed, and when this information is provided it should be provided by either their Neurologist or a dietician.
People living with MS are motivated to take charge of their health and well-being to manage their disease, however this can be challenging as there is potential that information being provided is overwhelming or unclear.
We are looking for a number of people living with MS to review a questionnaire before it is nationally distributed to measure the attitudes and perceptions provided by pwMS focused around diet and nutrition, and if they feel the correct supports are in place. It will add to the overall evidence base providing information on perception, attitudes and barriers in the arena of MS and nutrition.
If you are interested in reviewing this questionnaire, please contact firstname.lastname@example.org
EXERGAMES FOR EXERCISE RESEARCH
Liam Morrissey Msc. Ergonomics student at the University of Derby is conducting a study exploring the impact and usability of using exergames for exercise in MS patients.
The purpose of the study is to examine the perceived benefits and usability of exergames for exercise in MS patients using qualitative methodologies and the application of ergonomic design principles to any usability barriers identified in the study.
As a participant you will be asked to complete a short interview of 20 - 25 minutes with the researcher.
Click the link below to find out more about taking part:
Falls Prevention Study
University College Limerick are conducting a study with the aim of gaining consensus on a core outcome set for evaluating mixed diagnosis falls prevention interventions for people with Multiple Sclerosis, Parkinson’s Disease and Stroke (information sheet below). Participation would include the completion of a maximum of three survey rounds (which take approximately 15 minutes) and optional attendance at an online meeting where the final core outcome set will be agreed. If you are interested in taking part please email Nicola.OMalley@ul.ie
Current research requests
Exploring cognitive changes (thinking and memory) in Multiple Sclerosis
Researchers at Trinity College Dublin and Beaumont Hospital are carrying out a study exploring cognitive changes (thinking and memory) in Multiple Sclerosis. The study involves completing a short questionnaire about your cognition. You may also be invited to complete more detailed tests about your cognition and/or take part in an EEG recording session. Further information can be found here
If you are interested in participating the study, or would like further information, please contact: Tara Boyle, Research Assistant in the Academic Unit of Neurology, Trinity College Dublin via email: BOYLETA@tcd.ie
Anxiety and MS Study
PhD student Austin Fahy from the Department of Psychology in Maynooth University is undertaking research into the experience of anxiety in people with MS.
This research aims to increase understanding of anxiety in MS, both in terms of PwMS’s general experience of anxiety, and experiences of anxiety during Covid-19 to inform the development of supports for PwMS
THE SOCIETAL COST OF MULTIPLE SCLEROSIS IN IRELAND
'The Societal Cost of Multiple Sclerosis in Ireland’ was initially conducted in 2015. As much has changed in recent years, we are looking to gain an insight into the current ‘Societal Cost of MS in Ireland’ to identify and compare any differences in your lives.
Please complete the survey at the following link it should take 20 minutes
Physical Activity before and during the COVID pandemic
Dr Blathin Casey from University of Limerick (UL) and Dr Susan Coote from MS Ireland and the team at the Rehabilitation in MS Group want to find out more. We know that physical activity is important for people with MS both to manage physical symptoms and mental health. Since the pandemic our lives have been changed, and we want to learn more about what you are doing. For example the evolution of online classes mean that some people are now more active, while for others the inability to go to groups or classes means they are less active. This survey wants to find out what you did before, and what you are doing now, and to get your reasons for the changes, either positive or negative.
The Irish results will be combined and compared with results from a number of countries around the world. This will help us to guide future exercise classes and physiotherapy service provision around the country.
Please click this link to find out more and to take the survey.
understanding the opportunities and barriers for evaluating services delivered in MS Ireland
In collaboration with MS Ireland, Dr Rebecca Maguire (Associate Professor in the Department of Psychology at Maynooth University) and Austin Fahy (research assistant) are undertaking a project funded by the Irish Research Council which aims to understand the opportunities and barriers for evaluating services delivered in MS Ireland. It is so important for us to hear the voice of people with MS who have availed of any of the services delivered by MS Ireland.
This will involve a short anonymous survey of your experience in availing of services from MS Ireland. This survey will take about 15 minutes to complete and your feedback would be most appreciated. Please click on the link here
CLOTHING DESIGN NEEDS
A researcher from University of Limerick is seeking participants for a study to understand the clothing design needs of people living with MS or rheumatoid arthritis. Information about the study and how to get involved is available here click here
Exploring the Associates of Anxiety in People with Multiple Sclerosis
Researchers from the Department of Psychology at Maynooth University are currently looking for people with MS to take part in a study which will explore the factors associated with anxiety. Anxiety is a common experience in people with MS, but unfortunately this has also been linked with several negative physical and quality of life outcomes. By identifying the key associates of anxiety, the study aims to highlight some potential causes and methods of reducing anxiety in people living with MS.
If you agree to take part in the study, you will be asked to complete a short survey (10-20 minutes) which will collect some information on your experience of anxiety along with your thoughts about MS, your levels of social support and engagement in exercise. The content of this survey was guided by input from a panel of people with MS.
The survey can be accessed using the link below https://maynoothpsychology.qualtrics.com/jfe/form/SV_d0iUZeY2sQEetRr.
All input is greatly appreciated.
Exploring The perceptions of CBD oil
A fourth-year B. Applied Food Science and Nutrition student in St. Angela’s College, Sligo is researching the perceptions of CBD oil from the perspective of people living with MS as part of their final year research project. Find out how to get involved
Researchers in the University of Reading are interested in hearing what people with MS have to say about the supports they would like to made available to them to support them with mental health difficulties. Psychological and medical literature suggests that people with MS are more prone to mental health problems which highlights the heightened need for such services to be made available for this population.
To read more about our research and take part in the survey, please go to the following website and click the ‘start’ button at the bottom of the page. https://research.reading.ac.uk/neurodegenerative-diseases/multiple-sclerosis/ If you have difficulty accessing the survey on the information page, it can be accessed here: https://forms.gle/5YTssp4pDVFciYEe9
MS Ireland's Research Strategy for 2015-2019
Information for Researchers
Useful Information For Those Carrying Out MS-Related Research.
Research We Fund
MS Ireland Supports Undergraduate and Post-Graduate Researchers in Finding Participants For Studies and Disseminating Research Findings.