News

Let me share an incident that happened to me on a Luas recently. I was lucky enough to have nabbed the last available seat on a packed tram at rush hour in Dublin. I noticed an older lady standing beside me and I could nearly predict the scene that unfolded before my eyes. A Good Samaritan noticed that this older passenger needed a seat and looked straight in my direction. She asked me to give up my seat for somebody more deserving and I replied no. The Good Samaritan proceeded to shout all over the Luas about my lack of common decency and how people these days have no manners or respect. Outwardly I looked ok, this woman had no idea that I had been enduring MS fatigue since the moment I had woken up that day.

We have made a slight change to the agenda for our upcoming virtual conference. Dr Guido Guinti Garcia will be presenting from 4:30 – 5:30 rather than during the parallel sessions as previously stated.

The title of his presentation is: Involving people with MS to design digital health tools for fatigue: the More Stamina Case. If you still need to register for the National Conference you can do so here.

The European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) Congress is taking place in Amsterdam this week. They are holding a special event for people living with MS on Saturday, October 29th which can be attended virtually. Click here for more information or to register fo this event.

MS Ireland are delighted to announce that we will be hosting our National Conference on Saturday, November 19th from 10am - 4:30pm.

When you receive a life-changing diagnosis such as multiple sclerosis, it can lead to mental health issues. Even if you have never suffered with anxiety before there can be constant worrying about your condition and how you might be.

In August of 2021, MS Ireland, in collaboration with Novartis launched a voluntary national survey to explore the societal cost of MS in Ireland. It was a repeat of one conducted in 2015. This was a cross-sectional, self-reported online survey aiming to evaluate the cost of MS in Ireland in 2022 and to compare the data of this survey to the 2015 data.

MS Ireland were delighted to address members of the Oireachtas yesterday as part of our Pre-Budget event in Leinster House. We welcomed 20 TDs and Senators to the Pre-Budget Submission Briefing and Panel Discussion.