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Having a chronic incurable illness like MS can be a lonely experience. As much as those who don't have it do their best to understand it, only other MSers will truly 'get it'. I was offered three sessions with a counsellor after I was diagnosed but I remember sitting and wondering what do say to this nice woman who doesn't have MS but is here to help me? Maybe I just wasn't ready, but I was curious to meet other people around the same age. To see how they were coping. I did eventually.
This year HELL & BACK is sponsored again by the brilliant nineDots.io - Technology Recruitment.io and they have chosen MS Ireland as one of their charity partners for 2022 along with Pieta & Peter McVerry Trust. nineDots have kindly sponsored MS Ireland with 14 tickets (normally €70) for the event on Sat October 1st 2022!
The idea of life as a carer can be scary. It wasn’t a role I necessarily ever saw myself in but when my wife, Kathleen was diagnosed with MS 22 years ago I knew that no matter what she needed from me – I would do anything in my power to support her. I have never seen caring for Kathleen as a choice. When she needs me, I am there.
This week Emma Valentine shares what self care living with Multiple Sclerosis means to her, what settles her mind, calms her and that feeling of preparedness.
University College Limerick are conducting a study with the aim of gaining consensus on a core outcome set for evaluating mixed diagnosis falls prevention interventions for people with Multiple Sclerosis, Parkinson’s Disease and Stroke (information sheet below). Participation would include the completion of a maximum of three survey rounds (which take approximately 15 minutes) and optional attendance at an online meeting where the final core outcome set will be agreed. If you are interested in taking part please email Nicola.OMalley@ul.ie