Patients Deserve Better – Neurology Nurses Campaign

The Neurological Alliance of Ireland is the umbrella organisation for neurology patient organisations in Ireland. MS Ireland as members of this organisation have been supporting the Patients Deserve Better Campaign which aims to highlight the lack of neurology nurses across the country. Ireland requires further 100 neurology nurses in order to address unacceptable waiting periods, delays with diagnosis and treatment. Neurology nurses, including MS nurses play a crucial role in the care of people living with neurological conditions.

Mark Mitchell, who lives with MS took part in the campaign – recording a video to outline the support the MS nurse provides to him saying “When I met with the nurse specialist, she goes through all of my medications, my home situation, aids, facilities etc. and may make suggestions and recommendations for me. My life is so much better having access to a nurse specialist and going forward everyone should have access to one. I feel nurse specialists are crucial for people with neurological conditions.” The video featuring Mark, along with Registered Advanced Nurse Practitioner in MS, Sinéad Jordan is available here: https://www.youtube.com/watch?v=R3uJCN0CAR0

Support the campaign

Visit the Patients Deserve Better website

MS Ireland believe that all people living with MS should have appropriate access to an MS specialist nursing service and encourage our members to support this campaign. We encourage our members to support this campaign by visiting https://www.patientsdeservebetter.ie where you can select a local hospital, fill in your details and an email that supports the campaign and highlighting the lack of neurology nurses will be generated and sent to all TD’s and Senators representing patients in that hospital’s catchment area.

Support on social media

Liking or sharing our posts relating to this topic will help raise awareness and support for this campaign.

View past events

Virtual events have been taking place around the country to highlight the areas that are most impacted by this issues, including Limerick; Cork; Galway and Waterford. Powerful speakers, including people living with MS have shared their views and experiences, lending their stories to support the campaign.

To view past events, see: https://www.youtube.com/user/NeurologicalAlliance/videos

 

Further events are planned and will be shared on our social media and website.

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