Search

It’s that time of year again – awards season 2024. I’m no film buff, but even I can’t resist being swept up in the glamour and excitement of it all; whether it’s gushing over all of the designer gunas or admiring the A-lister’s hair and makeup.

While Barbie versus Oppenheimer seems to be dominating the talk of tinsel town, my eye has been drawn to a lesser-hyped moment of this season: Christina Applegate

The inspirational co-founder and CEO Robert Munns of the Oceans of Hope Challenge talks about the original Oceans of Hope which was sailed by an active crew of over 100 people with MS from across the globe. The circumnavigation sought to change the perceptions of what is possible when living with a chronic and debilitating condition. Oceans of Hope changed the mindset from disability to ability and led to Robert’s inspiring story of setting up the charity. 

Join us at 2pm on Tuesday, March 12th for an illuminating exploration of cutting-edge research in the field of Multiple Sclerosis (MS) during our Brain Awareness Week Research Roundup Webinar! 

Living with multiple sclerosis (MS) can present unique challenges, and addressing mental health is a crucial aspect of overall well-being for individuals with this condition. Anxiety and social isolation are common experiences for those struggling with mental health, which can exacerbate the difficulties of coping with everyday challenges. However, prioritising mental health is essential for leading a fulfilling life.

In Ireland, there are several valuable resources available to support individuals navigating mental health issues alongside MS. By utilising these resources and seeking support when needed, you can prioritise your mental health and enhance your overall well-being. Remember, you are not alone, and help is available whenever you need it.

This year's Brain Awareness Week takes place from the 10th - 16th March 2025 and the hashtag is #brainawarenessweek2025

Dear Niall,

Eight years ago I held your hand on a still May morning as we set off on our third Darkness into Light walk for Pieta House, a charity that we both owe a lot to. I knew our whole world was about to change. After three weeks in hospital the previous October, having undergone every test and multiple lumbar punctures, the threat of those two words clung to everything - Multiple Sclerosis.

MS Ireland launches the May 50K fitness challenge today at the MS Care Centre, Ireland’s only national respite centre for people with MS. We are calling on participants of all ages and abilities to take up the month long challenge in May in the run up to World MS Day on May 30th. Register now from https://www.themay50k.ie

The AIMS Research Network will provide talented undergraduate students with the opportunity to acquire experience in multiple sclerosis (MS) research during the summer of 2024. The aim of the award is to encourage promising undergraduates to consider a research career focused on MS and make discoveries that can ultimately halt disease.

Trevis Gleason’s new book, Living Well with Multiple Sclerosis, edited by Emma Rogan, is now available internationally.

Ten years ago, while waiting for a neurology appointment at Beaumont Hospital, I wrote a heart-wrenching blog post about the unpredictability and unfairness of having multiple sclerosis. Next month, I will go back to the scene of the crime - and in the same month I received my diagnosis, no less.