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In advanced MS, there is often weight loss or very poor dietary intake. These problems can be attributed to swallowing problems, depression, fatigue, side effects of medications, shaking/tremors, and/or cognitive changes. It is not uncommon for individuals to become dehydrated along with consuming too few calories. People with MS can become dehydrated very quickly.
This section addresses nutrition and eating. Even when MS causes swallowing problems, there may be ways to derive pleasure from eating.
What It Means To Be a Caregiver at the End of Life
Coming to the end of life is as natural as living, and may be filled with mixed emotions, and times of reflection for both the dying person and care giver. There are losses for both the person who is dying and the person who is the care giver. Care givers often experience a variety of feelings, including:
Planning ahead makes things easier. The best time to become an ‘educated consumer’ is not when you are in crisis, but when you can take your time learning about options and gathering information for future reference.
In this section, you will learn about various community home services that can provide clinical and emotional support to your family.
MS is a disease that can progress to a point where, not only is 24-hour care necessary, but 24-hour skilled nursing care is essential. At this point, the needs of the person with MS frequently exceed family resources. Significant cognitive loss, incontinence, nutritional compromise, and/or respiratory issues require complex clinical care.