Hello! My name is Joan Jordan and this is my M.S story. Please go easy on me readers as this is my first attempt at blogging. I was a very average English student in school but maybe I have a bit more to say about living life with MS than I ever had to say about Shakespeare’s Sonnets!
2010 was not a good year for me and my family. I was hospitalised in May, having lost the power in my hand and foot. I got my diagnosis of relapsing remitting MS ” Lightning Bolt No One...” Within a few days, my three year old was diagnosed with a severe form of epilepsy, called Doose Syndrome. “Lightning Bolt No Two..!”
Normally, I am a positive person. I have a “can-do” attitude and I can roll with the punches. I had been juggling a demanding job in I.T, a husband, a Celtic-tiger mortgage and two kids. This wasn’t normal though. Over the next few days / months / years I have come to know and love a new kind of normal. MS has taken so much but it has also given some unexpected things.
The small stuff has gone. I don’t worry about what other people think of me. I don’t worry if the dishes aren’t washed. I don’t look into other people’s lives and wish they were mine.
I love being there for my children. I love having an ice-cream on a sunny day and a hot chocolate on a chilly one. I love having the time to live my life. I love the friends who have stuck with me during a bumpy ride.
Since 2010, I have been involved in a clinical trial for an MS drug. It involves lots of extra trips to the hospital and lots of needles, but I feel that I am making a real contribution towards finding a cure. I will be on the trial for three years this week and intend to celebrate that I am still here - with a few scorch-marks from those lightning bolts!!
Thank you so much for reading my blog and I look forward to our comments.