MS & Me

*An introduction to our upcoming series discussing many of the stages of life with multiple sclerosis*

Recently I've had a few young people who have been recently diagnosed with MS get in touch. I'm always happy to hear from people, because on of the most common themes I see emerge when these young people start to open up is the isolation they feel post-diagnosis. It's hard to be the only one in your family, your friends, and your peer group that has MS. It sometimes feels like nobody understands.  

I don’t remember too much from the day I got diagnosed in the Lourdes Hospital but I do recall the doctor telling me that I would have to learn to manage my MS. Back then, I didn’t even know what a sclerosis was but I suppose that over the years, I have learned to get along with my lesions- always conscious of the fact that I am at their mercy. I try to get the best out of a bad situation and keep on top of current treatments, research and therapies.

Sometimes we don’t see things as clearly, some things we see more sharply.  One thing that is for certain, MS has changed the way I see things… 

“Oh, it’s getting there. Slowly but surely, and right now just a tad slower than usual…”

The 4th International Patients Summit 

Now that the same sex marriage referendum is over, #holidayplans is currently trending in my world. “Are you getting away this year?” is the hot topic! Before MS entered my life, holidays meant something very different. Having spent 51 weeks of the year chained to my work desk, I wanted to get as far away as possible and pack as much activity as I could into 7 precious, hectic days.

Greetings fellow travellers on the long, winding, pot hole strewn road that is Multiple Sclerosis!

Access to the UN Convention on the Rights of Persons with Disabilities

'With World MS Day upon us blogger Trevis Gleason believes that he is #strongerthanMS, but not alone'