MS & Me

Next week, 11th to the 17th June, is Carer’s Week in Ireland. We’re delighted to have Guest Blogger Gemma Donnelly Cox writing about being a Carer and how she balances life in the ‘here and now’ while also planning for the future.

This week Niamh McCarron shares her experience of having MS and working. Read on for her story of working and striving to stay professionally active and financially secure.

Have you joined the Kiss Goodbye to MS squad? This week Grace Kavanagh tells us why she joins in with thousands of others for the massive global campaign. It’s all about the Kiss!

MS is a difficult disease to live with. It's so unpredictable and is often described as an “invisible” illness because so many symptoms are felt by the person but not seen by others. As a result, having MS can be really isolating. We can’t always take part in activities or outings because just getting out of bed is a herculean effort. We’re not rude or antisocial - just exhausted, struggling or in pain. This isn’t the same for everyone but that sense of isolation can hit any of us.

This week the MS and Me AnonMS blogger, a health care professional, shares with us an insider’s perspective on disclosure. Does disclosing MS status lead to the condition overshadowing all other aspects of a person’s life and reduce them down to a diagnosis?

This week, in a letter to her nearest and dearest, Willeke Van Eeckhoutte puts down in words how she really feels. “What do you want me to say?”

This week Mary Deveraux shares with us her experience of Primary Progressive MS. Akin to the big stories we’re all familiar with, PPMS brings unexpected twists to life no-one ever expects. 

This week we welcome new writer Ciara O’Meara to MS and Me. Read on for her unique perspective on the MS patient experience. 

This week Christina McDonald goes deep into the experience of being diagnosed with MS. From being scared and grieving, she’s learned to doing things differently. More than ever before, she’s chasing her dreams. 

With a combined 175 years of living with the diagnosis of multiple sclerosis, the MS & Me blog team shares some golden nuggets of lessons learned.

Read the first blog for MS and Me from Katie St. Lawrence (24). She shares her experience of what it means to have fatigue, how she deals with it and how, thanks to being strategic about rest, energy and listening to her body, life is as enjoyable as ever.