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MS and Me Blog Team
09 Dec 2021

MS and Me Look Back - Part 1

As the year draws to an end, we are looking back over some of the blogs written by MS and Me bloggers during 2021.

We’d like to say thank you to everyone who reads and shares the blog posts and to those of you who send messages and write comments.

Writing a blog piece can be a challenge; sometimes it is difficult to share our experiences. We hope that our words are relatable to other people with MS. We also hope we help people without MS understand more about the condition and that we give a snapshot of what life with MS is like in Ireland. 

Christina
Christina McDonald
02 Dec 2021

Christmas Jumper Day 2021

December 10th is the annual Christmas Jumper Day for MS Ireland. The past two years have been hard for all of us living with the pandemic. As the world shut down in 2020, it was such a surreal experience for everyone. Thankfully this year the world has somewhat reopened. Hopefully next year we can say Covid is a thing of the past. With everything moving online due to social distancing, so many charities have lost out on fundraising.

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MS Ireland
29 Nov 2021

MS Explored Survey

MS Ireland were delighted to launch MS Explored - The Podcast back in September. As we begin planning for Season 2 we are keen to hear from our listeners and use this feedback to help inform our plans for future episodes. We are inviting our listeners to provide their feedback in a short 3 minute survey. The survey can be found here: 

https://www.surveymonkey.com/r/WPQ3PHZ

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MS Ireland
26 Nov 2021

Most Googled MS Questions

Accessing information is as simple as typing a question into Google and hitting ‘search’. However, not all of the results that are returned are reliable. The difficulty can be finding information that is current and correct. 

Dearbhla
Dearbhla Crosse
25 Nov 2021

Speaking Out - the importance of Disability Activism

There is a fear of disability ingrained in many of us from a young age. Being disabled or sick is seen as abnormal. Those of us with Multiple Sclerosis (MS) often deny ourselves the joy of participating for fear of being stigmatised. Disability has typically been something to hide as it makes others uncomfortable. Since some MS symptoms are invisible many people choose to conceal their disease as they worry about being treated differently or being isolated. This is further perpetuated by ‘masking’- passing as ‘non-disabled’. Invisible MS is more ‘palatable’ to the ableist world we navigate, which is perhaps why stigma is still so rife.

Niamh McCarron
Niamh McCarron
19 Nov 2021

COVID AND CHRISTMAS

I’ve just heard a Christmas ad on the radio. I’m sitting at the work-from-home space I’ve carved out in the corner of the sitting room, inside invisible boundary between my working day and evening routine. The sound of the Christmassy jingle startles me and I mutter that it’s a bit early for it, isn’t it?

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MS Ireland
12 Nov 2021

Readathon Avatar Competition

WIN €1000 WORTH OF BOOKS FOR YOUR SCHOOL

We already have 6 fab avatars who grace our website, but we reckon there’s room for one more. Here’s where you come in. We want you guys to design a new avatar to join the ranks alongside Pearl the Mermaid, Joan of Books the Warrior, Sir Readsalot the Knight, Bookie Monster, Cosmo the Cosmonaut and Dean the Dinosaur.

Nadia Anshasi
12 Nov 2021

MS AND PETS

What would you say if I told you that the best therapist has four legs and a wagging tail? Or that my best friend likes belly rubs and chasing after cats? You’d probably think I was crazy, but my closest companion happens to be my 8-year-old dog Alfie (he’s also known as Alfred when he gets into trouble!). He’s a cross between a Jack Russell Terrier and a Pug. His breed is more fondly known as a Jug! He’s the resident sock thief and postman patrol in our house and from the day he arrived, he’s left paw prints on all of our hearts.

Robert Joyce 2021
Robert Joyce
04 Nov 2021

MS and Mental Health

Thirty years ago, I was diagnosed with Relapsing Remitting MS. There were no treatments and the prospect for my future looked bleak. Mobility problems, the infamous MS hug and chronic fatigue were some of my early symptoms. I was 23 and looking forward to an exciting new career in London and it felt as if this bubble of optimism had been burst. Looking back, I did not have the mental tools to help me with such a life-altering diagnosis.

Declan
Declan Groeger
28 Oct 2021

Wheelathon: A moment in time

Whitney Houston sang about wanting ”One moment in time” and I’ve definitely wanted one moment when I’m more than I thought I could be. In fact, I believe that everyone deserves their own ‘moment in time’.

I was 64 on my last birthday and ‘celebrated’ my 33rd MSadversity shortly thereafter. I was never physical or sporty in my pre-MS life. I was never that way driven/focused and was happy just getting along. I never made the school teams, never wanted to climb a mountain or run a marathon but after the gravity of my MS diagnosis sank in, I wanted to keep going as long as I could. I wanted to be the best I could be.

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