Search
University College Limerick are conducting a study with the aim of gaining consensus on a core outcome set for evaluating mixed diagnosis falls prevention interventions for people with Multiple Sclerosis, Parkinson’s Disease and Stroke (information sheet below). Participation would include the completion of a maximum of three survey rounds (which take approximately 15 minutes) and optional attendance at an online meeting where the final core outcome set will be agreed. If you are interested in taking part please email Nicola.OMalley@ul.ie
MS Ireland is supporting World Brain Day 2022 and this year’s dedication of ‘Brain Health for All’
MS Ireland welcomes the publication of the Sláintecare Integration Fund End of Programme Report which set out the achievements of the 123 projects funded through the Sláintecare Integration Fund, including Active Neuro which was delivered by MS Ireland.
Summary of key asks for Budget 2023
- An increase of €600,000 in annual investment in the National MS Care Centre
- Sustainable funding for national physiotherapy services for people with Multiple Sclerosis, and other neurological conditions totalling €880,000 per annum across all 9 CHOs
- Provision of a further 100 neurology nurses in order to address unacceptable waiting periods, delays with diagnosis and treatment, with at least 20 to be provisioned in Budget 2023
- MS Ireland echoes the budget recommendations of Family Carers Ireland, the Neurological Alliance of Ireland and the Disability Federation of Ireland.
Liam Morrissey Msc. Ergonomics student at the University of Derby is conducting a study exploring the impact and usability of using exergames for exercise in MS patients.
My name is Shirley I'm 47 years old and I am living in Monkstown, Dublin. I was diagnosed with Relapsing Remitting MS 4 years ago now first receiving my diagnosis on the 4th of July 2018. Being diagnosed felt like a relief, it wasn't really a huge shock to me as my Aunt Jo had been living with MS. I had a feeling a year before my diagnosis as I was experiencing symptoms for a while, blurred vision, vertigo, and weakness in arms were the main ones.
Recently MS Ireland Submitted our Pre Budget Submission which you can read in full here
Summary of key asks for Budget 2023
- An increase of €600,000 in annual investment in the National MS Care Centre
- Sustainable funding for national physiotherapy services for people with Multiple Sclerosis, and other neurological conditions totalling €880,000 per annum across all 9 CHOs
- Provision of a further 100 neurology nurses in order to address unacceptable waiting periods, delays with diagnosis and treatment, with at least 20 to be provisioned in Budget 2023
- MS Ireland echoes the budget recommendations of Family Carers Ireland, the Neurological Alliance of Ireland and the Disability Federation of Ireland.
Alison Cotter is the newly appointed Research and Advocacy Officer and joined MS Ireland in May 2022. Alison has a Bachelor’s Degree in Law and Business from NUI Galway and has previously worked in the Houses of the Oireachtas.
A bit like a volcanic eruption, my MS relapses fall into three distinct periods over my life:
Stage 1- Scary! When I was having them but didn't know what was wrong with me.
Stage 2- Boom! My XXXL relapse when I got diagnosed.
Stage 3- The Sequel! Minor relapses or pseudo-ones. I'm hoping for no more number twos, but it’s always at the back of my mind.
So, here they are.
Tears caused by MS-related neuropathic pain in my left side.
After 18 years of fighting nerve pain on my left-side and all its unpredictable associated issues, Summer 2022 brought everything to the fore. Thinking about it as the sum of every year with MS, had taught me to perfect saying things like, “Oh, I am fine!”. Clearly, I am anything BUT fine.
In plain English, right at this moment, I am going through the Mother of All Relapses. It is not going well.