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We have a new webinar series called the Unspeakable Bits and our March edition is called ‘Money Matters” which will take place on Thursday, 30th March at 8pm for one hour online.  Our host Trevis L Gleason and a panel of MS professionals will talk about the planning for the 3 stages of life with MS. Financial planning are topics most people think of in their advancing years.  People with MS often must think of them earlier in life.   

The panel be answering questions from our MS community sent to us in advance, as well as from our live audience. We will be covering topics on finance like planning, investing, pensions, early retirement, long-term care, health, and life insurance/assurances. We will also be covering topics on law like wills, conservatorships, trusts and advanced directives.  We will also discuss topics like social protection and entitlements.  

Please either email your questions to aoifek@ms-society.ie. We welcome everyone to our live webinars so if you would like to attend, please register for free here 

The Annual General Meeting of the Multiple Sclerosis Society of Ireland, at which Board members are re-elected, is scheduled to take place on Saturday, 16th September 2023 in the Radisson Hotel, Athlone at 4.00 p.m.

We are currently seeking candidates including candidates with fundraising, sales and marketing and community development experience to go on to our panel of potential Board members. Members, Branches, Council the Board and staff may propose candidates. All nominations must be proposed and seconded by members.

Applicants, wishing to apply for a position on the Board in September 2023, are invited to submit their application form by 5.00 p.m. on 31st May 2023. The closing date for Applications under Article 56 of the Constitution is Friday, 16th June 2023

To be environmentally conscientious and to reduce unnecessary costs, MS Ireland is now able to send AGM notices to our members by email since the passing of our Constitution in 2016. However, we need our members consent to the furnishing of the accompanying AGM financial documentation via our website instead of by post. To allow us to do this please complete the approval form here and return to Alice McKeon, MS Ireland, National Office, 80 Northumberland Road, Dublin 4.

The AIMS Research Network will provide talented undergraduate students with the opportunity to acquire experience in multiple sclerosis (MS) research during the summer of 2023. The aim of the award is to encourage promising undergraduates to consider a research career focused on MS and make discoveries that can ultimately halt disease.

My Cog/Brain Fog and I have a temperamental relationship. Cog-fog is short for cognitive fog and is one of the invisible symptoms of MS. It can cause issues with concentration, memory, attention levels and even processing information. As we know Multiple Sclerosis is a disease of the central nervous system (brain and spinal cord). It also causes inflammation. In MS the signals and paths used between brain and body can misfire. Our brains have to work extra hard and this can cause our brains and bodies to become fatigued; because we have to try harder and use more energy than a person without MS, it can impact our cognitive function. 

The MS Ireland webinar series The Unspeakable Bits” returns on the March 30th online at 8.00pm.  This month the theme is ‘MS Money Matters” where the host Trevis L Gleason will talk about the planning for the 3 stages of life with MS with a panel of professionals covering financial planning, relevant law and social issues. We welcome everyone to our live webinars so if you would like to attend, please register for free here

Everyone knows that feeling when you wake up in the morning and you just don’t want to deal with the day. Maybe you have been working too hard, been too busy or are feeling a little down or unwell. Life can be exhausting; we all feel overwhelmed at times and need a well-deserved day to down tools and just be. It is certainly not an issue exclusive to people with MS or indeed any chronic illness. I do know however that it is becoming a far more regular feature in my life at the moment and I’m not sure how to feel about that. What happens when that well deserved ‘day’ of rest becomes every day? Is that a bad thing?

A research project currently taking place at the University College Dublin (UCD) is looking for people with and without Multiple Sclerosis (MS) to take part in a survey to learn more about the body image experience of people with MS.

Below is a description of the research project.

MS Ireland wants to employ nine specialist physiotherapists throughout Ireland to reach more people with MS and other neurological conditions. Setting up a national physiotherapy programme could save the state €19 million. MS Ireland, which has called for State funding to run a countrywide physiotherapy service, has said that delivering regular specialist physiotherapy to people with MS would significantly reduce GP and emergency department (ED) visits and hospital stays for this group of patients. Dr. Susan Coote, MS Ireland’s Exercise and Physiotherapy Co-Ordinator launched the campaign this week with AVA Battles, CEO MS Ireland, Senator Martin Conway and Deputy Colm Burke from the Oireachtas Joint Committee on Health at MS Ireland’s Bushy Park Campus in Dublin.