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To be environmentally conscientious and to reduce unnecessary costs, MS Ireland is now able to send AGM notices to our members by email since the passing of our Constitution in 2016. However, we need our members consent to the furnishing of the accompanying AGM financial documentation via our website instead of by post. To allow us to do this please complete the approval form here and return to Alice McKeon, MS Ireland, National Office, 80 Northumberland Road, Dublin 4.

The AIMS Research Network will provide talented undergraduate students with the opportunity to acquire experience in multiple sclerosis (MS) research during the summer of 2023. The aim of the award is to encourage promising undergraduates to consider a research career focused on MS and make discoveries that can ultimately halt disease.

My Cog/Brain Fog and I have a temperamental relationship. Cog-fog is short for cognitive fog and is one of the invisible symptoms of MS. It can cause issues with concentration, memory, attention levels and even processing information. As we know Multiple Sclerosis is a disease of the central nervous system (brain and spinal cord). It also causes inflammation. In MS the signals and paths used between brain and body can misfire. Our brains have to work extra hard and this can cause our brains and bodies to become fatigued; because we have to try harder and use more energy than a person without MS, it can impact our cognitive function. 

The MS Ireland webinar series The Unspeakable Bits” returns on the March 30th online at 8.00pm.  This month the theme is ‘MS Money Matters” where the host Trevis L Gleason will talk about the planning for the 3 stages of life with MS with a panel of professionals covering financial planning, relevant law and social issues. We welcome everyone to our live webinars so if you would like to attend, please register for free here

Everyone knows that feeling when you wake up in the morning and you just don’t want to deal with the day. Maybe you have been working too hard, been too busy or are feeling a little down or unwell. Life can be exhausting; we all feel overwhelmed at times and need a well-deserved day to down tools and just be. It is certainly not an issue exclusive to people with MS or indeed any chronic illness. I do know however that it is becoming a far more regular feature in my life at the moment and I’m not sure how to feel about that. What happens when that well deserved ‘day’ of rest becomes every day? Is that a bad thing?

A research project currently taking place at the University College Dublin (UCD) is looking for people with and without Multiple Sclerosis (MS) to take part in a survey to learn more about the body image experience of people with MS.

Below is a description of the research project.

MS Ireland wants to employ nine specialist physiotherapists throughout Ireland to reach more people with MS and other neurological conditions. Setting up a national physiotherapy programme could save the state €19 million. MS Ireland, which has called for State funding to run a countrywide physiotherapy service, has said that delivering regular specialist physiotherapy to people with MS would significantly reduce GP and emergency department (ED) visits and hospital stays for this group of patients. Dr. Susan Coote, MS Ireland’s Exercise and Physiotherapy Co-Ordinator launched the campaign this week with AVA Battles, CEO MS Ireland, Senator Martin Conway and Deputy Colm Burke from the Oireachtas Joint Committee on Health at MS Ireland’s Bushy Park Campus in Dublin.

*Multiple Sclerosis is an expensive disease. Find out how to cope on our next Unspeakable Bits webcast*

“Money”, as characters in the Kander and Ebb song from Cabaret quip, “Makes the world go round.”  And while multiple sclerosis doesn’t stop our world from spinning, it can reverse its polarity.

Our third installment of The Unspeakable Bits From a Life with MS airs on Thursday, 30th of March.  This month, we’re talking about the ‘earth-turning’ and normally avoided topic – Money.

Things are revving up as we launch The May 50k campaign 2023. The May 50K is a global fitness and fundraising challenge to raise money for MS research worldwide and also support MS Ireland projects and services. MS Ireland is calling on participants of all ages and abilities to take up the month long challenge in the run up to World MS Day on 30th May. All fundraising is done through our website here where you can log your KM’s hook up to your fitness devices and blog your way through the month. 

Health is a crown worn by those who are well and seen only by the sick.

                                                                                                                       Sudanese proverb

If I had it all over again… the phone call that confirmed that I had Multiple Sclerosis, and the subsequent 11 years, would I deal with it any better? Could I have made my journey to this point any easier? Were there ways to stop the mental and emotional carnage along the way? Would I ever stop feeling guilty? What would I say to myself? What would I say to me, to that Mary? It would go something like this…