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Turning challenges into change
I hate seeing documentaries or movies about tornadoes; they absolutely terrify me. There’s a recurring nightmare I have of being caught in a barren landscape at dusk, howling tornadoes circling the scene. Terror takes over with the thought of what is to come. I don’t have to delve very deep to know it is my fear of MS. MS progression to put my finger on it, lurking in the shadows of my mind, surfacing every now and then at night. It is always at night that our fears naturally become magnified but I also have many happy dreams where I am a young, physically strong 25-year-old again, totally MS-free for that short time while dreaming. When I wake up I feel quite cheated to find I’m 43, with MS! Our bodies never forget what was normal was, pre-MS, all those years ago. Our new “normal” states never feel quite right, and the dissonance of symptoms causes a sense of disquiet within us.
25th - 31st October 2015
Date for your diary!
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2nd - 6th November 2015
IMMA, otherwise known as the Museum of Modern Art in Kilmainham, always makes me imagine the dignified ghosts of old army pensioners sitting around the courtyard of the Royal Hospital in their distinctive Chelsea-pensioner red uniforms of ex-servicemen. There is a soothing feeling about the place; that of a job done, of rest, of a routine of predictable meals and duties. I am just being fanciful; I’ve never encountered anything there but modern art, but it does make me wonder about what it was like to live in the routine and care of an old institution.
UPDATED Public Statement – Positive Results Reported from Genentech/Roche Phase III Trial of Ocrelizumab in Primary Progressive MS
MS Ireland research programme is CLOSED
Budget 2016 has reduced some people within the MS community to utter despair.