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Irish life sciences company, Genomics Medicine Ireland (GMI) have announced an important scientific research study aimed at unlocking the mystery of the genetic and lifestyle factors that contribute to MS. Volunteers with MS currently being treated at St. Vincent’s University Hospital, Tallaght Hospital, Cork University Hospital or Altnagelvin Hospital in Derry are invited to participate in the study which aims to identify these factors in order to find better treatments, diagnoses and, ultimately, a cure for MS. GMI also hopes to rollout additional study sites around the country in future.
Letter to Minister Simon Harris regarding ocrelizumab
Many people with multiple sclerosis experience falls, which can have significant consequences for the individual. The MS Research Team at the University of Limerick, led by Professor Susan Coote, have developed a falls prevention programme for people with multiple sclerosis and would like to assess how suitable and effective the programme is.
Issue 4 is out now!
New international research published into treatment expectations of people with MS
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MS Ireland's response to the announcement of funding for respite care by Minister for Health Simon Harris
This week from the MS & Me archive Helen Farrell takes a look at the affects of MS-fatigue on friendships, employment and daily life.
Partners of MS are those people in our lives who travel some of the road with us. They hope for the best for us, worry with us and rejoice with us when things go our way. Nobody is perfect and people can sometimes let us down. I wonder how many of you experienced a loss similar to mine when roughly 50% of my so-called friends melted away after I was diagnosed? If a friend of mine at age 25 had been diagnosed with MS, would I have been any different? I would like to think I would have been helpful and caring and not let the diagnosis change my friendship, but who can tell for certain? MS can be a great clearer of deadwood and the friends that remain are so wonderful. Quite a few relationships went the same way in those early days of MS. One abruptly ended the first day I had to rest up due to MS; it was an instantanous deal-breaker. It really decimated my sense of self for a long time. Many relationships break down amongst ordinary people but the potential toll on our relationships can be much higher when one of us has MS. Sometimes we have just had the misfortune to partner or befriend a jerk; that can happen anyone.
Official charity partner for 2016