MS & Me

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MS & Me Bloggers Nadia Christine and Maggie
Christine Murphy
03 Mar 2022

MS and Identity

“I have MS, but MS hasn't got me” was the catchphrase bandied about by the MS Community circa the year 2000. Have you got MS or has MS got you? 

When I was diagnosed, I fell into the latter camp. I over-identified with having MS. In my own head, I was this tragic creature diagnosed in her prime. Instead of being a person who just happened to have a condition, illness, disease or whatever you want to call it, I became this vulnerable, scared, delicate being. I became an MS sufferer.

Christina
Christina McDonald
24 Feb 2022

Grief

Grief is the one thing in life we are all guaranteed to experience at some stage of life. When you lose a loved one, a pet or experience any loss you will experience grief. And for those of us who live with a chronic illness/disability, we face grief on a regular basis.

Mary Devereux July 2020
Mary Deveraux
17 Feb 2022

Mobility Aids: When they’re no longer an aid but a necessity

When you receive an MS diagnosis, acceptance doesn’t happen overnight. For me, there was never a ‘light bulb moment’ nor a precise day or time… in fact, my acceptance has probably been put off for a lot longer than is healthy.

It is really hard to move from denial to acceptance, to admitting to yourself that you may need assistance (whatever form it is); because MS is a progressive and incredibly unpredictable disease, there can be extended periods of time when a person does not need to use a mobility aid (or ever for some people with MS).

Robert Joyce 2021
Robert Joyce
10 Feb 2022

Part 2: Adapted vehicles

In the previous post Joan explained the process of getting the VAT & VRT back when you have a Primary Medical Certificate. I have been a disabled driver for a long time, back when I had Relapsing Remitting MS. Now my illness has progressed and I have had to consider the impact of worsening disability when purchasing a new car.

Joan Jordan
Joan Jordan
03 Feb 2022

Buying an Adapted Vehicle

This blog is a guide for anybody who has been granted the Primary Medical Certificate by the HSE and wants to avail of the Tax Relief Scheme. It details the steps I took to get a Revenue Exemption and buy an adapted vehicle.

I got my Primary Medical Certificate in November 2021. I’m not saying this is the only way, but it worked for me. It took me about two months to complete the process. First of all, take a few copies of your certificate and keep them somewhere safe. It’s a very valuable document! Next, you should read this article about tax relief for drivers with disabilities on the Citizen’s Information site.

Emma Rogan
Emma Rogan
06 Jan 2022

You don’t look any different New Year 2022!

Lockdown and Covid have changed me forever.

For the past 10 years or so I have been keeping a similar routine. I'd get up in the morning, have a cup of tea, breakfast and get on with my day. My schedule would be all about spending time with people. It would be getting children ready for school or creche, chats with the coffee guy at my station, watching the bleary-eyed strangers on the train or the lovely woman who always graced the pavement past me on the street when I walked to work.  There’d then be the banter with work colleagues as we got on with the tasks at hand.

Rosie Farrell
Rosie McCormack
23 Dec 2021

MS AND CHRISTMAS

There are the parts of Christmas I love, like time with family, winter walks, twinkling lights and evenings by a cosy fire. But the parts I like don’t always gel well with my MS. As a result, Christmas can turn into something of a marathon for me and excitement tends to quickly give way to dread when I realise there is no way my body will cope with all the festivities.

MS Christmas
Rosie McCormack
23 Dec 2021

MS Christmas by Rosie McCormack

There are the parts of Christmas I love, like time with family, winter walks, twinkling lights and evenings by a cosy fire. But the parts I like don’t always gel well with my MS. As a result, Christmas can turn into something of a marathon for me and excitement tends to quickly give way to dread when I realise there is no way my body will cope with all the festivities.

MS Ireland Logo
MS and Me Blog Team
09 Dec 2021

MS and Me Look Back - Part 1

As the year draws to an end, we are looking back over some of the blogs written by MS and Me bloggers during 2021.

We’d like to say thank you to everyone who reads and shares the blog posts and to those of you who send messages and write comments.

Writing a blog piece can be a challenge; sometimes it is difficult to share our experiences. We hope that our words are relatable to other people with MS. We also hope we help people without MS understand more about the condition and that we give a snapshot of what life with MS is like in Ireland. 

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