Lemtrada (Alemtuzumab) to be reimbursed by VHI

We are nearly half way through the campaign now and we can’t believe how time flies. Oh well, at least we’re having some cookie fun! We wanted to keep you up to date with how things are going.

Our friends over at McVitie’s have given us a big hamper, full to the brim with McVitie’s goodies but unfortunately for us here at Cookies HQ we can’t keep it so instead we’re offering you all the chance to win this delicious prize.

10 Years of Empty Promises as Successive Governments Fail to Invest in Rehabilitation Services

I hate seeing documentaries or movies about tornadoes; they absolutely terrify me. There’s a recurring nightmare I have of being caught in a barren landscape at dusk, howling tornadoes circling the scene. Terror takes over with the thought of what is to come. I don’t have to delve very deep to know it is my fear of MS. MS progression to put my finger on it, lurking in the shadows of my mind, surfacing every now and then at night. It is always at night that our fears naturally become magnified but I also have many happy dreams where I am a young, physically strong 25-year-old again, totally MS-free for that short time while dreaming. When I wake up I feel quite cheated to find I’m 43, with MS! Our bodies never forget what was normal was, pre-MS, all those years ago. Our new “normal” states never feel quite right, and the dissonance of symptoms causes a sense of disquiet within us. 

The Annual Galtee Walk was held on Sunday, 19th June. Now in its 35th year and despite the inclement weather it was heartwarming to see such a large turn out, showing their support and walking the Galtees to raise funds for the local Fermoy Branch.

Survey is now closed

Turning challenges into change

This week Aoife shares her decision to disclose her MS journey to family, friends and the wider community.

Launch of campaign calling for action on rehabiltation services