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I was just reading a blog post by Dr Eric Downer on the patient-researcher divide on 'Living Like You' and it brought to mind the need for patients to take part in research. Gandhi once said “the future depends on what we do in the present”. I know that he wasn’t talking about research and Multiple Sclerosis but it holds true just the same. If researchers do not do the research and we do not take part in that research then we are going nowhere fast; As Dr Downer said “We can read forever about the progression of the disease and symptoms in textbooks and journal papers, but we must talk more to people to understand individual experiences and hence become more informed.” Without the participation of patients such enquiries will grind to a halt. I think that if researchers have personal interactions with people affected by MS (or any other illness for that matter) it takes the illness out of the theoretical realms and lands it firmly in the personal realm.

Having fun whilst raising awareness and funds for local branch

Fundraiser for MS Ireland

Uncertainty ahead of 2015 Budget 

DFI is urging Government to use this Budget to make the case for an inclusive society that leaves no-one behind. Budget 2015 must break the chain of previous austerity budgets, improving vital services and income supports for people with disabilities, and addressing the growing levels of hardship in which this group unjustly find themselves.

Moone Boy superstars David Rawle and Ian O’Reilly officially kicked off the 2014 MS READaTHON in style at Dublin's oldest bookshop, Hodges Figgis, today. We were thrilled to be joined by our long-term supporters, the fabulous authors and illustrators; Sarah Webb, Marisa Mackle, Mariee Louise Fitzpatrick, Oisin McGann and Anna McPartlin. Also joining us were Finn Donnelly and some lovely pupils from The Children's House, Stillorgan and St Fintan's National School, Sutton.

MS & Me Community blog reach the final

Government urged to think of families in crisis

Progressive MS Alliance awards 22 research grants to develop treatments for progressive MS

How full is your (tea) cup?