Search

Bladder dysfunction and Multiple Sclerosis Unspeakable Bits Webinar.

This blog title gives me anxiety. What does a “better me” mean? Should I be writing an article like the many I’ve seen where people tell stories about how better their life is since MS diagnosis and how much they have achieved? People climbing mountains or running marathons? I have read a lot where people seem grateful for MS. I’m happy for them but let's get one thing straight from the start - I am not grateful for my diagnosis. MS has in no way improved my life. It sucks and any of the positive things that have come from it, like my learning mindfulness and becoming a calmer person, I like to think I would have discovered in time anyway. 

'The wind beneath my wings’: MS & Me Guest Blog Yvonne McBennett as part of World MS Day Campaign 'My Diagnosis' shares her personal story of being diagnosed with MS, the initial shock and the impact on her life and her family. Through her resilience and the support of MS Ireland, she discovers a sense of belonging. 

We are thrilled to share the wonderful news that, thanks to your participation and support, MS Ireland's Readathon 2023 raised an incredible €248,993!

My MS My Needs survey highlights the needs and experiences of people living with Multiple Sclerosis (MS) in Ireland.

In early 2023, MS Ireland undertook a comprehensive survey aimed at delving into the experiences and needs of young adults aged 18 to 35 living with Multiple Sclerosis (MS). The survey, which 126 people responded to, sought to gauge awareness of and engagement with MS Ireland, experiences at the time of diagnosis, challenges faced, and suggestions for improvement. 

Providing support or care to another person can be challenging, especially when it comes to an unpredictable condition like MS. The support of carers can be invaluable but it can take a toll on the carers themselves. Below are a number of resources which may be beneficial to carers when it comes to their self-care routines and practices. 

We are looking for your support for the following important Patients Deserve Better campaign led by the Neurological Alliance of Ireland (NAI), advocating for Neurology Services in Donegal.  

Listen to Alison Cotter, MS Ireland Advocacy and Research Officer on Newstalk Breakfast Briefing being interviewed with Shane Beatty on the findings from “My MS My Needs” Survey. 

The Neurological Alliance of Ireland’s Patients Deserve Better campaign is calling for regional neurology services in 5 hospitals across the country, in Bantry, Wexford, Portlaoise, Letterkenny and Mayo hospitals. 

Access to a Consultant Neurologist should not depend on where you live yet people with chronic long term neurological conditions are regularly travelling between 60 and 112 km to see their Neurologist.