Search

I swear sometimes in life I am the unluckiest person going. My mother has said so often, “Katie, if it wasn’t for bad luck, you would have no luck at all!”

There are times when I look at my life and see a series of unfortunate events. I would write a book about it but there is already a book with that title! One time the doctor even said she had never seen the side effects of a medications happen to anyone before and guess who it happened to?? Yes, me! The doctor was completely shocked when my blood work came back showing the results. I just told the doctor “If it has to happen to someone it will be me.”

MS Ireland is calling on people with Multiple Sclerosis in Ireland to help us plan for their service needs over the coming years by participating in our My MS My Needs Survey.  

 

• MS Ireland is asking people with MS in Ireland to take our new My MS My Needs Survey 

• Help us discover the most important MS services required for Ireland in 2023 

• Our survey can be accessed here: https://lnkd.in/eGQ2DUVd 

• The survey takes approximately 15-30 minutes to complete. 

Dr Susan Coote discusses MS Ireland’s plan for sustainable national physiotherapy services on Midlands 103 Health and Fitness Show

Dr Susan Coote, MS Ireland’s Exercise and Physiotherapy Co-Ordinator launched MS Ireland’s 3,000 Push Ups in March Challenge on Clare FM’s Morning Focus Show this week. To highlight this fundraiser Morning focus’ host Alan Morrissey will be taking up this great challenge in March. Speaking of the upcoming challenge Alan Morrissey, the host of Clare’s most listened to radio show said “I'm delighted to be taking part in the 3,000 Push Ups in March Challenge. Not only will it help support the vital services provided by MS Ireland, but from a health viewpoint it will also really benefit those taking part. I am really hoping that by the end of March I will have shed some of the extra pounds which made themselves at home on my body over Christmas. I would encourage as many people as possible to take part in the 3,000 Push Ups in March Challenge."  Listen to the Clare FM interview here 

 

We have a new webinar series called the Unspeakable Bits and our March edition is called ‘Money Matters” which will take place on Thursday, 30th March at 8pm for one hour online.  Our host Trevis L Gleason and a panel of MS professionals will talk about the planning for the 3 stages of life with MS. Financial planning are topics most people think of in their advancing years.  People with MS often must think of them earlier in life.   

The panel be answering questions from our MS community sent to us in advance, as well as from our live audience. We will be covering topics on finance like planning, investing, pensions, early retirement, long-term care, health, and life insurance/assurances. We will also be covering topics on law like wills, conservatorships, trusts and advanced directives.  We will also discuss topics like social protection and entitlements.  

Please either email your questions to aoifek@ms-society.ie. We welcome everyone to our live webinars so if you would like to attend, please register for free here 

The Annual General Meeting of the Multiple Sclerosis Society of Ireland, at which Board members are re-elected, is scheduled to take place on Saturday, 16th September 2023 in the Radisson Hotel, Athlone at 4.00 p.m.

We are currently seeking candidates including candidates with fundraising, sales and marketing and community development experience to go on to our panel of potential Board members. Members, Branches, Council the Board and staff may propose candidates. All nominations must be proposed and seconded by members.

Applicants, wishing to apply for a position on the Board in September 2023, are invited to submit their application form by 5.00 p.m. on 31st May 2023. The closing date for Applications under Article 56 of the Constitution is Friday, 16th June 2023

To be environmentally conscientious and to reduce unnecessary costs, MS Ireland is now able to send AGM notices to our members by email since the passing of our Constitution in 2016. However, we need our members consent to the furnishing of the accompanying AGM financial documentation via our website instead of by post. To allow us to do this please complete the approval form here and return to Alice McKeon, MS Ireland, National Office, 80 Northumberland Road, Dublin 4.

The AIMS Research Network will provide talented undergraduate students with the opportunity to acquire experience in multiple sclerosis (MS) research during the summer of 2023. The aim of the award is to encourage promising undergraduates to consider a research career focused on MS and make discoveries that can ultimately halt disease.

My Cog/Brain Fog and I have a temperamental relationship. Cog-fog is short for cognitive fog and is one of the invisible symptoms of MS. It can cause issues with concentration, memory, attention levels and even processing information. As we know Multiple Sclerosis is a disease of the central nervous system (brain and spinal cord). It also causes inflammation. In MS the signals and paths used between brain and body can misfire. Our brains have to work extra hard and this can cause our brains and bodies to become fatigued; because we have to try harder and use more energy than a person without MS, it can impact our cognitive function.