Research

MS Ireland was delighted to see MS well represented at the Future Neuro Patient Public Involvement (PPI) event last week.  

MS Ireland were delighted to launch MS Explored - The Podcast back in September. As we begin planning for Season 2 we are keen to hear from our listeners and use this feedback to help inform our plans for future episodes. We are inviting our listeners to provide their feedback in a short 3 minute survey. The survey can be found here: 

https://www.surveymonkey.com/r/WPQ3PHZ

An anonymous survey is being co-ordinated by Prof Ronan Killeen, Consultant Radiologist, St Vincent's University Hospital and Dr Brendan Kelly, PhD candidate UCD and Radiology SpR and designed with input from MS Ireland. 

MS Ireland launches dedicated resource ‘Understanding MS@Work’ for people living with MS and their employers to become more informed on the daily impact of MS. 9 out of 10 people with MS say the pandemic has helped steer conversations with their employers about the benefits of working from home long-term.

• New research among MS Ireland members reveals impact of COVID-19 on employment, and how working life with MS can be better understood by employers
• 80% of people with MS say the way they work has changed as a result of the pandemic
• Although 85% say their employer knows they are living with MS, more than one-fifth (21%) of respondents cited ‘lack of understanding / empathy’ as the issue that most impacts their working life

‘The Societal Cost of Multiple Sclerosis in Ireland’ was initially conducted in 2015. As much has changed in recent years, we are looking to gain an insight into the current ‘Societal Cost of MS in Ireland’ to identify and compare any differences in your lives. Please complete the survey at the following link it should take 20 minutes.

The National Transport Authority (NTA) is conducting research with the aim of gaining a better understanding of the accessibility requirements and experience of users of small public service vehicle (SPSV), for example taxis and hackneys.

Love Home Swap is currently looking for participants to help them in a research project that will open the doors to better holiday options for people with accessibility needs.

World Brain Day 2021 is dedicated to multiple sclerosis (MS), a neurological disease that affects 2.8 million people of all ages globally. Disease-modifying treatments slow the progression of MS, yet access to these medications is unavailable in many parts of the world. 

On World Brain Day, 22rd July the Neurological Alliance of Ireland (NAI) are launching their report on online service provision across neurological care services in response to COVID19. When the pandemic hit in 2020, many services moved online resulting in significant changes for both service users and service providers.

The MS International Federation is delighted to be partnering with the World Federation of Neurology (WFN) this year on World Brain Day. The 2021 theme is Stop Multiple Sclerosis.

As part of the 2021 World Brain Day campaign, the WFN and MSIF are inviting those with multiple sclerosis, their loved ones, healthcare professionals, multiple sclerosis organisations and everyone else to join in to raise awareness to stop multiple sclerosis through the use of the hashtag #WorldBrainDay2021.